ArticleJournal of patient experience2018
Motivations and Experiences of Canadians Seeking Treatment for Lyme Disease Outside of the Conventional Canadian Health-Care System.
Article in Journal of patient experience, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Clinical and economic outcomes evaluated in Lyme disease: a systematic review.Parasites & vectors · 2020Pooled it
- Observational
- 'You adapt, and you try not to resent it': a qualitative study exploring impacts of living with ticks and barriers to adopting preventive measures in Canada.BMC public health · 2025Article
- Understanding the Perspectives, Experiences, Beliefs, and Knowledge of Health Care Practitioners on the Diagnosis and Treatment of Lyme Disease in Canada.Journal of the Association of Medical Microbiology and Infectious Disease Canada = Journal officiel de l'Association pour la microbiologie medicale et l'infectiologie Canada · 2025Article
- Lyme borreliosis and medical wandering: what do patients think about multidisciplinary management? A qualitative study in the context of scientific and social controversy.BMC infectious diseases · 2024Article
- Article
- Healthcare costs and outcomes associated with laboratory-confirmed Lyme disease in Ontario, Canada: A population-based cohort study.PloS one · 2023Article
- Seeking Care for Long COVID: A Narrative Analysis of Canadian Experiences.Journal of patient experience · 2023Article
- Knowing the entire story - a focus group study on patient experiences with chronic Lyme-associated symptoms (chronic Lyme disease).BMC primary care · 2022Article
- Multidisciplinary Management of Suspected Lyme Borreliosis: Clinical Features of 569 Patients, and Factors Associated with Recovery at 3 and 12 Months, a Prospective Cohort Study.Microorganisms · 2022Article
- Perceptions, Representations, and Experiences of Patients Presenting Nonspecific Symptoms in the Context of Suspected Lyme Borreliosis.Microorganisms · 2021Article
- Experience and knowledge of Lyme disease: A scoping review of patient-provider communication.Ticks and tick-borne diseases · 2021Article
- Lyme Disease Patient Outcomes and Experiences; A Retrospective Cohort Study.Healthcare (Basel, Switzerland) · 2020Article
- Knowledge and Knowledge Needs about Lyme Disease among Occupational and Recreational Users of the Outdoors.International journal of environmental research and public health · 2020Article
- Parenting When Children Have Lyme Disease: Fear, Frustration, Advocacy.Healthcare (Basel, Switzerland) · 2019Article
- A Multiple Streams Approach to Understanding the Issues and Challenges of Lyme Disease Management in Canada's Maritime Provinces.International journal of environmental research and public health · 2019Article
- Under-Detection of Lyme Disease in Canada.Healthcare (Basel, Switzerland) · 2018Article
- Update on Lyme disease diagnostic approaches and protocols in Canada: Overview of existing testing strategies and limitations.Canadian family physician Medecin de famille canadienReview
- Lyme Disease Training and Knowledge Translation Resources Available to Canadian Healthcare Professionals: A Gray Literature Review.Journal of primary care & community healthReview
- Registered Nurses' Knowledge, Attitudes, and Practices Toward Climate-Sensitive Vector-Borne Diseases: Findings From a Cross-Sectional Survey.Public health nursing (Boston, Mass.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveWe aimed to describe the experiences of Canadians who seek diagnosis and treatment for Lyme disease outside of the conventional Canadian health-care system.
methodsForty-five individuals who had sought treatment for Lyme disease outside of the conventional Canadian health-care system were recruited from Lyme support and advocacy groups across Canada to answer open-ended questions about their experiences.
resultsRespondents sought treatment outside of the conventional medical system due to extensive diagnostic procedures and treatments that did not resolve symptoms. Escalating health concerns, lack of effective treatment, and stigma produced a sense of abandonment and desperation. Respondents accessed alternative forms of care based on the recommendations of peers, yet considerable financial and emotional stress was experienced.
conclusionsMany individuals with Lyme or Lyme-like diseases are deeply dissatisfied with the care received within the conventional Canadian health-care system and therefore felt both pushed and pulled to seek treatments either from international physicians using different treatment protocols or from alternative medicine providers in Canada.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.