ArticleLife sciences, society and policy2018
Disease surveillance data sharing for public health: the next ethical frontiers.
Article in Life sciences, society and policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Ethics, Integrity, and Retributions of Digital Detection Surveillance Systems for Infectious Diseases: Systematic Literature Review.Journal of medical Internet research · 2021Pooled it
- Digital Data Sources and Their Impact on People's Health: A Systematic Review of Systematic Reviews.Frontiers in public health · 2021Pooled it
- Interdisciplinary human-centric architectural framework for One Health surveillance, early warning, and response: leveraging AI modelling and IoT environmental monitoring.Frontiers in public health · 2026Article
- Application of an Innovative Methodology to Build Infrastructure for Digital Transformation of Health Systems: Developmental Program Evaluation.JMIR formative research · 2025Article
- Epidemiological methods in transition: Minimizing biases in classical and digital approaches.PLOS digital health · 2025Review
- It's late, but not too late to transform health systems: a global digital citizen science observatory for local solutions to global problems.Frontiers in digital health · 2024Article
- Enabling Multicentric Participatory Disease Surveillance for Global Health Enhancement: Viewpoint on Global Flu View.JMIR public health and surveillance · 2023Article
- Digital Health Dashboards for Decision-Making to Enable Rapid Responses During Public Health Crises: Replicable and Scalable Methodology.JMIR research protocols · 2023Article
- Understanding the Security and Privacy Concerns About the Use of Identifiable Health Data in the Context of the COVID-19 Pandemic: Survey Study of Public Attitudes Toward COVID-19 and Data-Sharing.JMIR formative research · 2022Article
- The role of AI technology in prediction, diagnosis and treatment of colorectal cancer.Artificial intelligence review · 2022Article
- Data and Digital Solutions to Support Surveillance Strategies in the Context of the COVID-19 Pandemic.Frontiers in digital health · 2021Review
- Natural outbreaks and bioterrorism: How to deal with the two sides of the same coin?Journal of global health · 2020Review
- Digital microbiology.Clinical microbiology and infection : the official publication of the European Society of Clinical Microbiology and Infectious Diseases · 2020Review
- COVID-19 positive test result from a private hospital laboratory: Neglecting to report and problems with national infection control.Infection control and hospital epidemiology · 2020Article
- A Global Digital Citizen Science Policy to Tackle Pandemics Like COVID-19.Journal of medical Internet research · 2020Article
- Social Media- and Internet-Based Disease Surveillance for Public Health.Annual review of public health · 2020Review
- Research data management in health and biomedical citizen science: practices and prospects.JAMIA open · 2020Article
- Data Sharing and Global Public Health: Defining What We Mean by Data.Frontiers in digital health · 2020Article
- Pathogen Genomics in Public Health.The New England journal of medicine · 2019Article
- Challenges in the development of digital public health interventions and mapped solutions: Findings from a scoping review.Digital healthArticle
Corrections and comments
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Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In the recent years, we have been witnessing a digital revolution in public and global health creating unprecedented opportunities for epidemic intelligence and public health emergencies. However, these opportunities created a double edge sword as access to data, quality monitoring and assurance, as well as governance and regulation frameworks for data privacy are lagging behind technological achievements.In this paper we identify three ethical challenges: sharing data across various early warning tools to support risk assessment. Secondly, define the challenges to be addressed by the legal frameworks for public health data sharing to unlock the potential of population-level datasets for research with no impact on citizens privacy. The third challenge lies with stricter regulation of the IT industry with regards to manipulating user data - such an initiative, GDPR, comes to force in the EU in May 2018.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.