ArticleThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics2018
Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance.
Article in The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Informed consent in genetic and genomic studies in Sub-Saharan Africa: a systematic review of bioethical issues.BMC medical ethics · 2025Pooled it
- Characterizing core outcomes of responsible stewardship for human genomic data in the cloud.BMC medical genomics · 2026Article
- Review
- Towards trustworthiness of precision medicine research for people with disabilities.Nature genetics · 2025Article
- Team Science in Precision Medicine Research:The Case for Inclusion of Adults With Intellectual Disability.American journal on intellectual and developmental disabilities · 2025Article
- Ethical governance for genomic data science in the cloud.Nature reviews. Genetics · 2025Article
- No person left behind: Mapping the health policy landscape for genomics research in the Caribbean.Lancet regional health. Americas · 2022Review
- The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research.Genetics in medicine : official journal of the American College of Medical Genetics · 2022Article
- Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries.Genome medicine · 2021Article
- Return of individual genomic research results: are laws and policies keeping step?European journal of human genetics : EJHG · 2019Article
- A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research.Frontiers in genetics · 2019Article
- Access and Management: Indigenous Perspectives on Genomic Data Sharing.Ethnicity & disease · 2019Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
PubMed holds no abstract for this paper.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.