Evidence map›Paper›PMID 29961034›Full record

ArticleBMJ open2018

Development of a toolkit to enhance care processes for people with a long-term neurological condition: a qualitative descriptive study.

Ann Sezier, Suzie Mudge, Nicola Kayes, Paula Kersten, Deborah Payne, Matire Harwood, Eden Potter, Greta Smith, Kathryn M McPherson

Abstract read
In one paragraph

Article in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Trial
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Ann SezierCentre for Person Centred Research, Health & Rehabilitation Research Institute, University of Technology, Auckland, New Zealand.
Suzie MudgeCentre for Person Centred Research, Health & Rehabilitation Research Institute, University of Technology, Auckland, New Zealand.
Nicola KayesCentre for Person Centred Research, Health & Rehabilitation Research Institute, University of Technology, Auckland, New Zealand.
Paula KerstenSchool of Health Sciences, University of Brighton, Brighton, UK.
Deborah PayneCentre for Person Centred Research, Health & Rehabilitation Research Institute, University of Technology, Auckland, New Zealand.
Matire HarwoodUniveristy of Auckland, Auckland, New Zealand.
Eden PotterDesign for Health and Wellbeing (DHW) Lab, Auckland District Health Board and Auckland University of Technology collaboration, Auckland, New Zealand.
Greta SmithCentre for Person Centred Research, Health & Rehabilitation Research Institute, University of Technology, Auckland, New Zealand.
Kathryn M McPhersonHealth Research Council of New Zealand, Auckland, New Zealand.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo (A) explore perspectives of people with a long-term neurological condition, and of their family, clinicians and other stakeholders on three key processes: two-way communication, self-management and coordination of long-term care; and (B) use these data to develop a 'Living Well Toolkit', a structural support aiming to enhance the quality of these care processes.

designThis qualitative descriptive study drew on the principles of participatory research. Data from interviews and focus groups with participants (n=25) recruited from five hospital, rehabilitation and community settings in New Zealand were analysed using conventional content analysis. Consultation with a knowledge-user group (n=4) and an implementation champion group (n=4) provided additional operational knowledge important to toolkit development and its integration into clinical practice.

resultsFour main, and one overarching, themes were constructed: (1)

conclusionPerspectives of healthcare users, clinicians and other stakeholders were fundamental to the development of the Living Well Toolkit. The findings were used to frame toolkit specifications and highlighted potential operational issues that could prove key to its success. Further research to evaluate its use is now underway.

Indexed as

Attitude of Health PersonnelFocus GroupsHealth PersonnelHumansLong-Term CareNervous System DiseasesNew ZealandPatient-Centered CareProgram DevelopmentQualitative ResearchQuality of LifeSelf Carelong-term conditionsperson-centredqualitative researchtoolkit

Identifiers

PMID29961034
PMCPMC6042578

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.