ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2019
Using photography to explore psychological distress in patients with pancreatic cancer and their caregivers: a qualitative study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 3 of them syntheses that pooled it.
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Who cites it
20 citing papers in PubMed, 3 syntheses or guidelines pooled it, 43 citations in OpenAlex.
- Photovoice Utilization for Research in Cancer Survivors: A Systematic Review.Psycho-oncology · 2026Pooled it
- Experiences of informal caregivers supporting individuals with upper gastrointestinal cancers: a systematic review.BMC health services research · 2024Pooled it
- Systematic review of caregiver burden, unmet needs and quality-of-life among informal caregivers of patients with pancreatic cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- Review
- A Grounded Theory of the Lived Experiences of People with Pancreatic Cancer in Northern Ireland: Study Protocol.Healthcare (Basel, Switzerland) · 2025Article
- A Qualitative Study Examining Caregivers' Perspectives on Healthcare System Barriers and Facilitators to Foregut Cancer Care.The Journal of surgical research · 2025Article
- Living With Advanced Pancreatic Cancer: Patients' Experiences of Daily Life.Psycho-oncology · 2025Article
- Article
- Influence of Coping, Esteem, and Resilience on Caregiver Distress in Pancreatic Cancer Patient-Caregiver Dyads.Healthcare (Basel, Switzerland) · 2025Article
- Psychological capital and death anxiety in pancreatic cancer patients: a latent profile analysis.Frontiers in psychiatry · 2025Article
- A qualitative exploration of the dynamics of guilt experience in family cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Caring experiences of family caregivers of patients with pancreatic cancer: an integrative literature review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Review
- This is what life with cancer looks like: exploring experiences of adolescent and young adults with cancer using two visual approaches.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Article
- Pilot trial of remote monitoring to prevent malnutrition after hepatopancreatobiliary surgery.BMC nutrition · 2021Article
- Determining desire to live among patients with advanced hepatobiliary-pancreatic cancer for whom curative treatment is not indicated.Global health & medicine · 2021Article
- Health-related quality of life and medical comorbidities in older patients with pancreatic adenocarcinoma: An analysis using the 1998-2011 surveillance, epidemiology, and end results-medicare health outcomes survey data.Journal of geriatric oncology · 2020Article
- Providing care to a family member affected by head and neck cancer: a phenomenological study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- Psychological stress and pancreatic cancer patients: a qualitative systematic review protocol.JBI evidence synthesis · 2020Article
- Avoiding Breach of Patient Confidentiality: Trial of a Smartphone Application That Enables Secure Clinical Photography and Communication.Plastic surgery (Oakville, Ont.) · 2020Article
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 1 country.
Funding
Abstract
purposeThe quality of life (QOL) experiences of patients with pancreatic cancer and their caregivers is poorly understood. Psychological distress is high, but few studies examine the factors associated with psychological distress. The purpose of this study is to gain a richer understanding of the factors associated with psychological distress from patient and caregiver perspectives.
methodsTwenty participants (13 patients, 7 caregivers) completed group discussions on the experiences of living with pancreatic cancer. Using photovoice methods, participants took photographs and provided narratives depicting the distress they experienced. Participant-produced photographs and group discussion transcripts were analyzed to identify key themes using thematic analysis.
resultsCommonalities between patient and caregiver sources of distress emerged despite their distinct roles. Findings revealed four major areas of distress: diagnosis of an unexpected advanced cancer, changes in roles and identity, management of weight loss and gastrointestinal problems, and fear of the future. Participants also discussed unique perspectives such as the stigma of pancreatic cancer and caregiver guilt.
conclusionsPhotovoice provides a unique insight into the lives of patients with pancreatic cancer and their caregivers. Our findings contribute to the gap in the current literature by providing a better understanding of the factors surrounding pancreatic cancer distress. We also identify several clinical recommendations to improve cancer care delivery and areas for future research.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.