ArticleArchives of physical medicine and rehabilitation2019
The Development of a New Computer Adaptive Test to Evaluate Anxiety in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Caregiver-Specific Anxiety.
Article in Archives of physical medicine and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06991673 (Adolescent Surgery Roadmap Feasibility and Acceptability Study), which is not on this map. Cited by 22 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Adolescent Surgery Roadmap Feasibility and Acceptability Study
Who cites it
22 citing papers in PubMed.
- Completion and Compliance Rates for an Intensive mHealth Study Design to Promote Self-Awareness and Self-Care Among Care Partners of Individuals With Traumatic Brain Injury: Secondary Analysis of a Randomized Controlled Trial.JMIR mHealth and uHealth · 2025Trial
- Improving Outcomes for Care Partners of Individuals With Traumatic Brain Injury: Results for a mHealth Randomized Control Trial of the CareQOL App.Archives of physical medicine and rehabilitation · 2025Trial
- An app-based just-in-time-adaptive self-management intervention for care partners: The CareQOL feasibility pilot study.Rehabilitation psychology · 2022Trial
- Understanding and Assessing Health-Related Quality of Life in Caregivers of Individuals With Traumatic Brain Injury and Comorbid Posttraumatic Stress Disorder.Archives of physical medicine and rehabilitation · 2026Article
- A comprehensive parent training program for parents of neurodivergent children with pathological demand avoidance: The Paradigm Shift ProgramPediatric investigation · 2026Article
- Critical Functional Domains in Pediatric Onset TUBB4A-Related Leukodystrophy: A Clinical and Caregiver's Perspective.Pediatric neurology · 2025Article
- Experiences and Hope in Caregivers of Children With Aicardi Goutières Syndrome.Journal of child neurology · 2025Article
- Customizing Computerized Adaptive Test Stopping Rules for Clinical Settings Using the Negative Affect Subdomain of the NIH Toolbox Emotion Battery: Simulation Study.JMIR formative research · 2025Article
- A Mobile Health Intervention in Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: A Randomized Controlled Trial to Examine Health-Related Quality of Life.BMC digital health · 2025Article
- The reliability and validity of the TBI-CareQOL system in four diverse caregiver groups.Journal of patient-reported outcomes · 2023Article
- Article
- An App-Based Just-in-Time Adaptive Self-management Intervention for Care Partners (CareQOL): Protocol for a Pilot Trial.JMIR research protocols · 2021Article
- Swedish translation and cross-cultural adaptation of eight pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)Journal of patient-reported outcomes · 2021Article
- TBI-CareQOL military health care frustration in caregivers of service members/veterans with traumatic brain injury.Rehabilitation psychology · 2020Article
- Spirituality and outcomes in caregivers of persons with traumatic brain injury (TBI).Rehabilitation psychology · 2020Article
- Promoting Health and Well-Being Through Mobile Health Technology (Roadmap 2.0) in Family Caregivers and Patients Undergoing Hematopoietic Stem Cell Transplantation: Protocol for the Development of a Mobile Randomized Controlled Trial.JMIR research protocols · 2020Article
- Group Differences Among Caregivers of Civilians and Service Members or Veterans With Traumatic Brain Injury.Archives of physical medicine and rehabilitation · 2019Observational
- The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury.Archives of physical medicine and rehabilitation · 2019Article
- Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures.Archives of physical medicine and rehabilitation · 2019Article
- Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Reliability and Validity Data for the TBI-CareQOL Measurement System.Archives of physical medicine and rehabilitation · 2019Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
objectiveTo design a new measure of caregiver-specific anxiety for use in caregivers of individuals with traumatic brain injury (TBI), the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Caregiver-Specific Anxiety item bank.
designCross-sectional survey study.
settingThree TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility.
participantsThree hundred forty-four caregivers of civilians with TBI and 216 caregivers of service members/veterans with TBI (N=560).
interventionsNot applicable.
main outcome measuresTBI-CareQOL Caregiver-Specific Anxiety item bank.
resultsThe retention of 40 Caregiver-Specific Anxiety items was supported by exploratory and confirmatory factor analyses. Graded response model (GRM) and differential item functioning analyses supported the retention of 33 items in the final measure. Expert review and GRM calibration data was used to select a 6-item static short form, and GRM calibration data was used to program the TBI-CareQOL Caregiver-Specific Anxiety computer adaptive test (CAT).
conclusionsEstablished, rigorous measurement development standards were used to develop the new TBI-CareQOL Caregiver-Specific Anxiety CAT and corresponding 6-item short form. This measure is the first patient-reported outcome measure designed to assess caregiver-specific anxiety in caregivers of individuals with TBI. The measure exhibits strong psychometric properties.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.