ArticleChildren (Basel, Switzerland)2018
Supporting Parent Caregivers of Children with Life-Limiting Illness.
Article in Children (Basel, Switzerland), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
49 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- A Dutch clinical practice guideline for paediatric palliative care: a systematic review and recommendations on psychosocial care including preloss and bereavement care.BMC palliative care · 2025Guideline
- Understanding the effectiveness and design of parent-oriented mobile health interventions: a systematic review and narrative synthesis.BMC pediatrics · 2025Pooled it
- Decision-making regarding place of end-of-life care for children with life-limiting and life-threatening conditions: a systematic integrative review.BMC palliative care · 2025Pooled it
- The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review.Palliative medicine · 2023Pooled it
- Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis.BMJ supportive & palliative care · 2023Pooled it
- Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis.Palliative medicine · 2023Pooled it
- Review
- Tailoring support for parents of children in palliative care: Feasibility of the carer support needs assessment tool intervention paediatric in a Norwegian context.Palliative care and social practice · 2026Article
- "The American journal of hospice & palliative care · 2025Article
- Effects of Spiritual Well-Being on Caregiver Burden of Parents of Children with Tracheostomy in Türkiye: The Mediating Role of Psychological Resilience.Journal of religion and health · 2025Observational
- Greek Version of the Distress Thermometer for Parents of Children with Dysphagia: A Validation Study.Journal of clinical medicine · 2025Article
- Navigating the Healthcare System with a Complex Chronic Condition: Multidimensional Roles of Adolescents, Young Adults, and Parents.Children (Basel, Switzerland) · 2025Article
- Practical and Effective Mentorship Strategies for Caregivers of Children with Chronic Conditions: A Scoping Review.International journal of environmental research and public health · 2025Article
- Healthcare professionals' discussion of loss and grief with parents of children with life-limiting severe neurological impairment: Findings from a scoping review.Palliative & supportive care · 2025Article
- When caring hurts: Chronic back pain, anxiety, and depression among caregivers of chronically ill children in Nigeria.PLOS mental health · 2025Article
- Biography Writing in the Pediatric Palliative Care Context: Review and Feasibility Data.Children (Basel, Switzerland) · 2024Article
- Touching Technology-Parents' Experiences of Remote Consultations for Children With Severe Congenital Cardiac Conditions: Quasi-Experimental Cohort Study.JMIR pediatrics and parenting · 2024Article
- Family caregivers of children transitioning hospital to home receiving nasogastric feeding: descriptive qualitative study.Pediatric research · 2024Article
- 'Managing an unexpected life - a caregiver's career': Parents' experience of caring for their child with a non-malignant life-limiting condition.Journal of child health care : for professionals working with children in the hospital and community · 2024Article
- Cognitive testing of the Children's Palliative Outcome Scale (C-POS) with children, young people and their parents/carers.Palliative medicine · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The well-being of parents is essential to the well-being of children with life-limiting illness. Parents are vulnerable to a range of negative financial, physical, and psychosocial issues due to caregiving tasks and other stressors related to the illness of their child. Pediatric palliative care practitioners provide good care to children by supporting their parents in decision-making and difficult conversations, by managing pain and other symptoms in the ill child, and by addressing parent and family needs for care coordination, respite, bereavement, and social and emotional support. No matter the design or setting of a pediatric palliative care team, practitioners can seek to provide for parent needs by referral or intervention by the care team.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.