ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2018
Feasibility of implementing an electronic social support and resource visualization tool for caregivers in a neuro-oncology clinic.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03026699 (Refining and Testing the Electronic Social Network Assessment Program), which is not on this map. Cited by 18 papers, 4 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Refining and Testing the Electronic Social Network Assessment Program (eSNAP)
Who cites it
18 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Effects of web-based interventions on cancer caregivers' burden and quality of life: A systematic review and meta-analysis.Palliative & supportive care · 2025Pooled it
- Effectiveness of Skill-Building Interventions for Informal Caregivers of Adults with Cancer: a Systematic Review.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Pooled it
- Palliative care and end-of-life care in adults with malignant brain tumors.Neuro-oncology · 2023Pooled it
- Benefits of supportive strategies for carers of people with high-grade glioma: a systematic review : Strategies for addressing the needs of high-grade glioma carers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- Building on and tailoring to: Adapting a cancer caregiver psychoeducational intervention for rural settings.Cancer medicine · 2024Trial
- A randomized wait-list controlled trial of a social support intervention for caregivers of patients with primary malignant brain tumor.BMC health services research · 2021Trial
- Application-Based Interventions for Family Caregivers of Older Adults: Scoping Review.JMIR aging · 2026Article
- The CARING intervention for neuro-oncology family caregivers: Primary outcomes from an abbreviated randomized controlled trial.Neuro-oncology practice · 2026Article
- Group-based interventions for caregivers to patients diagnosed with a brain tumor: A systematic review.Neuro-oncology practice · 2025Article
- The CARING intervention for neuro-oncology family caregivers: Randomized controlled trial feasibility, eSNAP/caregiver navigation engagement, and acceptability.Neuro-oncology practice · 2025Article
- Reporting standards in randomized controlled trials involving neuro-oncology caregivers: A systematic review report from the RANO-Cares working group.Neuro-oncology practice · 2025Article
- "We've Changed, the World's Changed": Leveraging Knowledge from COVID-19 to Improve Self-management for Cancer Survivors and Care Partners.Cancer care research online · 2025Article
- Simulation-based caregiving skills training for family members of high-grade glioma patients.Neuro-oncology practice · 2024Article
- Unmet needs and wish for support of family caregivers of primary brain tumor patients.Neuro-oncology practice · 2023Article
- Technology-Based Interventions for Cancer Caregivers: Concept Analysis.JMIR cancer · 2021Article
- Caregivers of Patients With Brain Metastases: A Description of Caregiving Responsibilities and Psychosocial Well-being.The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses · 2020Article
- Reply to: "Providing care to a family member affected by head and neck cancer: a phenomenological study".Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- Social networks of caregivers of patients with primary malignant brain tumor.Psychology, health & medicine · 2019Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
purposeThe goals of this study were to assess the feasibility of a web-based application-electronic Social Network Assessment Program (eSNAP)-to automate the capture and visualization of family caregiver social network data of neuro-oncology patients.
methodsCaregivers were recruited from a neuro-oncology clinic at an NCI-designated comprehensive cancer center. Participants completed baseline questionnaires on a laptop in clinic assessing demographic characteristics. After baseline, participants were randomly assigned to either create a social network visualization using eSNAP (intervention) or to usual care (control) condition. Those who used eSNAP provided likeability/usability data. All participants were asked to complete follow-up questionnaires at 3 and 6 weeks after baseline to determine feasibility of longitudinal study.
resultsWe recruited 40 caregivers of patients with primary malignant brain tumor to participate in this study. Participants rated eSNAP usability and likeability highly, indicating that eSNAP would help them consider their available social support. At 3 weeks, 90% of participants completed questionnaires and 82.5% completed questionnaires at 6 weeks.
conclusionsThere is a need to encourage family caregivers of patients with primary malignant brain tumor to engage their existing social network resources to help alleviate caregiver burden. Our findings suggest that our web-based application to address this issue is feasible to implement with high usability and likeability. This pilot study identified minor changes to the intervention to improve effectiveness and has implications for future research in this understudied population.
trial registrationclinicaltrials.gov, protocol number NCT03026699.
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