Evidence map›Paper›PMID 29942634›Full record

ArticleDigital health

Using social media for health research: Methodological and ethical considerations for recruitment and intervention delivery.

Danielle Arigo, Sherry Pagoto, Lisa Carter-Harris, Sarah E Lillie, Camille Nebeker

Registry-linked trialAbstract read
In one paragraph

Article in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05824273 (Leveraging Social Media to Increase Lung Cancer Screening Awareness, Knowledge and Uptake in High-Risk Populations), which is not on this map. Cited by 121 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
121citing papers in PubMed, 6 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05824273 nacompletednot on this map

Leveraging Social Media to Increase Lung Cancer Screening Awareness, Knowledge and Uptake in High-Risk Populations

TypeinterventionalSponsorHackensack Meridian HealthRan2023 to 2024Enrolled512ConditionsLung CancerArmsLungTalk, Non-tailored intervention - Standard of practice
3 · Its place in the literature

Who cites it

121 citing papers in PubMed, 6 syntheses or guidelines pooled it.

  1. Identifying Social Media-Based Interactions That Help Adults to Adhere to Weight Loss Goals: A Systematic Review.Obesity reviews : an official journal of the International Association for the Study of Obesity · 2026
    Pooled it
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  3. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review.Genetics in medicine : official journal of the American College of Medical Genetics · 2021
    Pooled it
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  9. Can targeted recruitment methods affect male participation in weight loss interventions and trials?Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2026
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  15. Lessons Learned from Replicating a Randomized Control Trial Evaluation of an App-Based Sexual Health Program.International journal of environmental research and public health · 2021
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61 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Danielle ArigoThe University of Scranton, USA.ORCID 0000-0002-7807-5913
Sherry PagotoUniversity of Connecticut, USA.
Lisa Carter-HarrisIndiana University School of Nursing, USA.
Sarah E LillieMinneapolis VA Health Care System, USA.
Camille NebekerUniversity of California at San Diego, USA.

Funding

Identifying and Targeting Unique Physical Activity Determinants for Midlife WomenK23HL136657 · NHLBI · UNIVERSITY OF SCRANTON · PI ARIGO, DANIELLE · 2018 to 2022
$762k
6 · The paper itself

Abstract

As the popularity and diversity of social media platforms increases so does their utility for health research. Using social media for recruitment into clinical studies and/or delivering health behavior interventions may increase reach to a broader audience. However, evidence supporting the efficacy of these approaches is limited, and key questions remain with respect to optimal benchmarks, intervention development and methodology, participant engagement, informed consent, privacy, and data management. Little methodological guidance is available to researchers interested in using social media for health research. In this Tutorial, we summarize the content of the 2017 Society for Behavioral Medicine Pre-Conference Course entitled 'Using Social Media for Research,' at which the authors presented their experiences with methodological and ethical issues relating to social media-enabled research recruitment and intervention delivery. We identify common pitfalls and provide recommendations for recruitment and intervention via social media. We also discuss the ethical and responsible conduct of research using social media for each of these purposes.

Indexed as

Digital healthFacebookhealth behavior changeresearch ethicssocial mediaTwitter

Identifiers

PMID29942634
PMCPMC6016568

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.