ArticleArchives of physical medicine and rehabilitation2019
Understanding Health-related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Mental Health Measures.
Article in Archives of physical medicine and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 43 citations in OpenAlex.
- Caregiver strain is strongly associated with health and family outcomes in military couples following traumatic brain injury in service members and veterans.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Article
- The Family Wellness Program: a bench to bedside translation of behavioral and social science research into a clinical program for intimate partners of warfighters following traumatic brain injury.Frontiers in health services · 2025Review
- Efficacy and Implementation Planning Across the Veterans Affairs Polytrauma System of Care: Protocol for the REACH Intervention for Caregivers of Veterans and Service Members With Traumatic Brain Injury.JMIR research protocols · 2024Article
- A mixed-methods evaluation of the experience of emerging young adult care partners.Psychology in the schools · 2023Article
- Caregiver sleep impairment and service member and veteran adjustment following traumatic brain injury is related to caregiver health-related quality of life.Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine · 2022Article
- Pain interference and health-related quality of life in caregivers of service members and veterans with traumatic brain injury and mental health comorbidity.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Article
- An App-Based Just-in-Time Adaptive Self-management Intervention for Care Partners (CareQOL): Protocol for a Pilot Trial.JMIR research protocols · 2021Article
- Hippocampal and rostral anterior cingulate blood flow is associated with affective symptoms in chronic traumatic brain injury.Brain research · 2021Article
- Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL).Rehabilitation psychology · 2020Article
- TBI-CareQOL military health care frustration in caregivers of service members/veterans with traumatic brain injury.Rehabilitation psychology · 2020Article
- Spirituality and outcomes in caregivers of persons with traumatic brain injury (TBI).Rehabilitation psychology · 2020Article
- Resilience is associated with health-related quality of life in caregivers of service members and veterans following traumatic brain injury.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Race/Ethnicity and Informal Caregiver Burden After Traumatic Brain Injury: A Scoping Study.Health equity · 2020Article
- The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury.Archives of physical medicine and rehabilitation · 2019Article
- Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Reliability and Validity Data for the TBI-CareQOL Measurement System.Archives of physical medicine and rehabilitation · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 6 institutions in 2 countries.
Funding
Abstract
objectiveTo provide important reliability and validity data to support the use of the Patient-Reported Outcomes Measurement Information System (PROMIS) mental health measures in caregivers of civilians or service members/veterans (SMVs) with traumatic brain injury (TBI).
designPatient-reported outcome surveys administered through an electronic data collection platform.
settingThree TBI model systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility.
participantsCaregivers (N=560) of individuals with a documented TBI (344 civilians and 216 military).
interventionNot applicable.
main outcome measuresPROMIS anxiety, depression, and anger item banks.
resultsInternal consistency for all the PROMIS Mental Health item banks was very good (all α>.86) and 3-week test-retest reliability was good to adequate (ranged from .65 to .85). Convergent validity and discriminant validity of the PROMIS measures were also supported. Caregivers of individuals who were low functioning had worse emotional health-related quality of life (HRQOL) (as measured by the 3 PROMIS measures) than caregivers of high-functioning individuals, supporting known groups validity. Finally, levels of distress, as measured by the PROMIS measures, were elevated for those caring for low-functioning individuals in both samples (rates ranged from 26.2% to 43.6% for caregivers of low-functioning individuals).
conclusionsResults support the reliability and validity of the PROMIS anxiety, depression, and anger item banks in caregivers of civilians and SMVs with TBI. Ultimately, these measures can be used to provide a standardized assessment of HRQOL because it relates to mental health in these caregivers.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.