ArticleArchives of physical medicine and rehabilitation2019
Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Fatigue and Sleep Disturbance Item Banks.
Article in Archives of physical medicine and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 33 citations in OpenAlex.
- Understanding sleep-related quality of life in caregivers of people with traumatic brain injury.Rehabilitation psychology · 2026Article
- Understanding and Assessing Health-Related Quality of Life in Caregivers of Individuals With Traumatic Brain Injury and Comorbid Posttraumatic Stress Disorder.Archives of physical medicine and rehabilitation · 2026Article
- Progressive Achilles Loading via Clinician e-Support (PACE): Protocol for a Dual-Site Randomized Controlled Trial.JMIR research protocols · 2026Article
- Physical Activity and Sedentary Behavior in Assisted Living Residents: Feasibility and Acceptability of a Longitudinal Study.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- The Family Wellness Program: a bench to bedside translation of behavioral and social science research into a clinical program for intimate partners of warfighters following traumatic brain injury.Frontiers in health services · 2025Review
- Topic: Evaluation and Treatment of Social Isolation and Loneliness: Evidence-based Recommendations for Stroke and Neurological Rehabilitation.Current physical medicine and rehabilitation reports · 2025Article
- A Mobile Health Intervention in Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: A Randomized Controlled Trial to Examine Health-Related Quality of Life.BMC digital health · 2025Article
- Assessing sleep in primary brain tumor patients using smart wearables and patient-reported data: Feasibility and interim analysis of an observational study.Neuro-oncology practice · 2024Article
- Traumatic brain injury and sleep in military and veteran populations: A literature review.NeuroRehabilitation · 2024Review
- Concussion History and the Emotional and Behavioral Dyscontrol Domains of Health-Related Quality of Life in College Students.Journal of athletic training · 2023Article
- A Confirmatory Factor Analysis of the PROMIS Sleep Disturbance Among Law Enforcement Officers.Journal of police and criminal psychology · 2022Article
- Article
- An App-Based Just-in-Time Adaptive Self-management Intervention for Care Partners (CareQOL): Protocol for a Pilot Trial.JMIR research protocols · 2021Article
- Hippocampal and rostral anterior cingulate blood flow is associated with affective symptoms in chronic traumatic brain injury.Brain research · 2021Article
- Assessing the psychometric properties of the PROMIS sleep measures in persons with psychosis.Sleep · 2021Article
- Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL).Rehabilitation psychology · 2020Article
- TBI-CareQOL military health care frustration in caregivers of service members/veterans with traumatic brain injury.Rehabilitation psychology · 2020Article
- Spirituality and outcomes in caregivers of persons with traumatic brain injury (TBI).Rehabilitation psychology · 2020Article
- Resilience is associated with health-related quality of life in caregivers of service members and veterans following traumatic brain injury.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Establishing the Factor Structure of a Health-Related Quality of Life Measurement System for Caregivers of Persons Living With Traumatic Brain Injury.Archives of physical medicine and rehabilitation · 2020Article
Corrections and comments
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Authors and funding
10 authors at 5 institutions in 2 countries.
Funding
Abstract
objectiveTo examine the reliability and validity of Patient-Reported Outcomes Measurement Information System (PROMIS) measures of sleep disturbance and fatigue in traumatic brain injury (TBI) caregivers and to determine the severity of fatigue and sleep disturbance in these caregivers.
designCross-sectional survey data collected through an online data capture platform.
settingA total of 4 rehabilitation hospitals and Walter Reed National Military Medical Center.
participantsCaregivers (N=560) of civilians (n=344) and service member/veterans (SMVs) (n=216) with TBI.
interventionNot applicable.
main outcome measuresPROMIS sleep and fatigue measures administered as both computerized adaptive tests (CATs) and 4-item short forms (SFs).
resultsFor both samples, floor and ceiling effects for the PROMIS measures were low (<11%), internal consistency was very good (all α≥0.80), and test-retest reliability was acceptable (all r≥0.70 except for the fatigue CAT in the SMV sample r=0.63). Convergent validity was supported by moderate correlations between the PROMIS and related measures. Discriminant validity was supported by low correlations between PROMIS measures and measures of dissimilar constructs. PROMIS scores indicated significantly worse sleep and fatigue for those caring for someone with high levels versus low levels of impairment.
conclusionsFindings support the reliability and validity of the PROMIS CAT and SF measures of sleep disturbance and fatigue in caregivers of civilians and SMVs with TBI.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.