ArticleSocial psychiatry and psychiatric epidemiology2018
Participatory research: real or imagined.
Article in Social psychiatry and psychiatric epidemiology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
20 citing papers in PubMed.
- Pathways for Strengthening Lived Experience Leadership for Transformative Systems Change: Reflections on Research and Collective Change Strategies.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Exploring Elinor Ostrom's principles for collaborative group working within a user-led project: lessons from a collaboration between researchers and a user-led organisation.Research involvement and engagement · 2024Article
- Patient and Public Involvement in Research: Lessons for Inflammatory Bowel Disease.Journal of Crohn's & colitis · 2023Review
- Article
- Can everyone hear me? Reflections on the use of global online workshops for promoting inclusive knowledge generation.Qualitative research : QR · 2023Article
- Impact of Depsychopathologization of Transgender and Gender Diverse Individuals in ICD-11 on Care Delivery: Looking at Trans Expertise through a Trans Lens.International journal of environmental research and public health · 2022Article
- Trans Expertise and the Revision and Translation of ICD-11: An Analysis of Available French Data from a Trans Perspective.International journal of environmental research and public health · 2022Article
- Investigating mental health service user views of stigma on Twitter during COVID-19: a mixed-methods study.Journal of mental health (Abingdon, England) · 2022Article
- To what extent are patients involved in researching safety in acute mental healthcare?Research involvement and engagement · 2022Review
- Investigation of Carers' Perspectives of Dementia Misconceptions on Twitter: Focus Group Study.JMIR aging · 2022Article
- Challenges and Lessons Learned in the Development of a Participatory Learning and Action Intervention to Tackle Antibiotic Resistance: Experiences From Northern Vietnam.Frontiers in public health · 2022Article
- Participatory autism research: Early career and established researchers' views and experiences.Autism : the international journal of research and practice · 2022Article
- 'You want to deal with power while riding on power': global perspectives on power in participatory health research and co-production approaches.BMJ global health · 2021Article
- 'A limpet on a ship': Spatio-temporal dynamics of patient and public involvement in research.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Measuring the impact of participatory research in psychiatry: How the search for epistemic justifications obscures ethical considerations.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Designed to Clash? Reflecting on the Practical, Personal, and Structural Challenges of Collaborative Research in Psychiatry.Frontiers in psychiatry · 2021Review
- If not now, when? COVID-19, lived experience, and a moment for real change.The lancet. Psychiatry · 2020Article
- Experiences of Parachute NYC: An Integration of Open Dialogue and Intentional Peer Support.Community mental health journal · 2020Article
- Lost in the shadows: reflections on the dark side of co-production.Health research policy and systems · 2020Article
- Codeveloping and Evaluating a Campaign to Reduce Dementia Misconceptions on Twitter: Machine Learning Study.JMIR infodemiologyArticle
Corrections and comments
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Authors and funding
1 author.
Funding
Abstract
backgroundParticipatory research has as a central tenet that power relations between researcher and researched be reduced. In the last 20 years, a substantial literature has demonstrated the difficulties inherent in this as well as the troublesome nature of certain central concepts.
aims(1) To describe and illustrate a new form of participatory research where the researchers share at least something with the participants in the research. That is, all are users of mental health services. (2) To reflect on the novel form of participatory research in terms of whether it shares, mitigates or avoids some of the difficulties of more traditional forms and to pose the question: what is a mental health community?
resultsThe model described is new in that the researchers have a different status than in conventional participatory research. But it is illuminated by and itself illuminates issues of power relations in research and difficulties in reducing that; gatekeepers and the exclusion of crucial groups of service users; the confusion of demographic representativeness with the silencing of marginalized perspectives; coming out of the academic space and the shifting issue of what counts as 'communities' in mental health.
conclusionThe examples given are moderate in scale and relevant to social psychiatry. Yet they may change methods and the definition of participatory research and at the same time be vitiated by but also illuminate dilemmas already identified in the literature albeit in different formations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.