ArticleBMC health services research2018
A person-centered integrated care quality framework, based on a qualitative study of patients' evaluation of care in light of chronic care ideals.
Article in BMC health services research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
47 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Commonality of 25 component themes of integrated care for children: rapid review of 170 models.BMC health services research · 2025Pooled it
- Toward an Interdisciplinary Approach to Constructing Care Delivery Pathways From Electronic Health Care Databases to Support Integrated Care in Chronic Conditions: Systematic Review of Quantification and Visualization Methods.Journal of medical Internet research · 2023Pooled it
- A systematic review of impact of person-centred interventions for serious physical illness in terms of outcomes and costs.BMJ open · 2022Pooled it
- The Evidence Base for an Ideal Care Pathway for Frail Multimorbid Elderly: Combined Scoping and Systematic Intervention Review.Journal of medical Internet research · 2019Pooled it
- Person-centred, integrated and pro-active care for multi-morbid elderly with advanced care needs: a propensity score-matched controlled trial.BMC health services research · 2019Trial
- Where Is the Client in Client-Centered Care? Centering the Experiences of Integrated Care Among Black Women in Public Health Settings.Healthcare (Basel, Switzerland) · 2026Article
- Enhancing Post-Discharge Care for People Who Have Had an Acute Myocardial Infarction in Portugal: Insights From Patient Journey Mapping.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Collecting and Sharing Person-Centered AI Clinical Summaries Across Frailty Services Provided by the National Health Service and Voluntary, Community, and Social Enterprise: Protocol for a Co-Design and Feasibility Study.JMIR research protocols · 2025Article
- Person-Centred Care in Association with Psychological Well-Being of Older Adults.Healthcare (Basel, Switzerland) · 2025Article
- Goals should be defined as CLEVER before specifying them into SMART goals: A phenomenological hermeneutical study to facilitate the implementation of goal-oriented care in primary care.The British journal of occupational therapy · 2025Article
- Patient experiences with person-centred and integrated chronic care, focusing on patients with low socioeconomic status: a qualitative study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Article
- Health and Social Care Integration: Insights from International Implementation Cases.Journal of market access & health policy · 2025Article
- How Has 'What Matters to You' Been Used for Patient Care? A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Article
- 'I haven't discussed anything with anyone': lived experience of long-term users of benzodiazepine receptor agonists regarding their treatment for substance use disorder.International journal of qualitative studies on health and well-being · 2024Article
- Living With and Beyond Cancer With Comorbid Conditions: Qualitative Insights to Understand Psychosocial Support Needs.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Characteristics of Existing Online Patient Navigation Interventions: Scoping Review.JMIR medical informatics · 2024Article
- Person-Centred Care: A Support Strategy for Managing Non-Communicable Diseases.Healthcare (Basel, Switzerland) · 2024Article
- Article
- People-centred primary health care: a scoping review.BMC primary care · 2023Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundPerson-Centered Integrated Care (PC-IC) is believed to improve outcomes and experience for persons with multiple long-term and complex conditions. No broad consensus exists regarding how to capture the patient-experienced quality of PC-IC. Most PC-IC evaluation tools focus on care events or care in general. Building on others' and our previous work, we outlined a 4-stage goal-oriented PC-IC process ideal: 1) Personalized goal setting 2) Care planning aligned with goals 3) Care delivery according to plan, and 4) Evaluation of goal attainment. We aimed to explore, apply, refine and operationalize this quality of care framework.
methodsThis paper is a qualitative evaluative review of the individual Patient Pathways (iPP) experiences of 19 strategically chosen persons with multimorbidity in light of ideals for chronic care. The iPP includes all care events, addressing the persons collected health issues, organized by time. We constructed iPPs based on the electronic health record (from general practice, nursing services, and hospital) with patient follow-up interviews. The application of the framework and its refinement were parallel processes. Both were based on analysis of salient themes in the empirical material in light of the PC-IC process ideal and progressively more informed applications of themes and questions.
resultsThe informants consistently reviewed care quality by how care supported/ threatened their long-term goals. Personal goals were either implicit or identified by "What matters to you?" Informants expected care to address their long-term goals and placed responsibility for care quality and delivery at the system level. The PC-IC process framework exposed system failure in identifying long-term goals, provision of shared long-term multimorbidity care plans, monitoring of care delivery and goal evaluation. The PC-IC framework includes descriptions of ideal care, key questions and literature references for each stage of the PC-IC process. This first version of a PC-IC process framework needs further validation in other settings.
conclusionGaps in care that are invisible with event-based quality of care frameworks become apparent when evaluated by a long-term goal-driven PC-IC process framework. The framework appears meaningful to persons with multimorbidity.
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Registered trials
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