ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers, 4 of them syntheses that pooled it.
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Who cites it
41 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Verbal and Nonverbal Expressions of Persons Living With Dementia as Indicators of Person-Centered Caregiving.The Gerontologist · 2022Pooled it
- The Effectiveness of e-Health Solutions for Aging With Cognitive Impairment: A Systematic Review.The Gerontologist · 2021Pooled it
- A Systematic Review of Home-Setting Psychoeducation Interventions for Behavioral Changes in Dementia: Some Lessons for the COVID-19 Pandemic and Post-Pandemic Assistance.Frontiers in psychiatry · 2020Pooled it
- Development of the Observable Well-Being in Living With Dementia-Scale.American journal of Alzheimer's disease and other dementiasPooled it
- 12-month trajectory and predictors of affect balance in nursing home residents living with dementia.Aging & mental health · 2022Trial
- An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT.Health technology assessment (Winchester, England) · 2022Trial
- Promoting Independence in Dementia (PRIDE): A Feasibility Randomized Controlled Trial.Clinical interventions in aging · 2021Trial
- Advance care planning with people with dementia: a process evaluation of an educational intervention for general practitioners.BMC family practice · 2020Trial
- Measures used to evaluate psychosocial interventions in dementia care: A narrative review and synthesis.Journal of Alzheimer's disease : JAD · 2026Review
- Validation of the ICECAP-O for assessing wellbeing in people with mild dementia in Denmark.Health and quality of life outcomes · 2026Article
- Dementia-Friendly Hospital-The Perspective of Professional Dementia Experts.Journal of clinical nursing · 2026Article
- Measuring dementia caregiving styles to improve person-centered care.Innovation in aging · 2026Article
- Validating the CG-STYLE measure in family caregivers of individuals living with dementia.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- "We will tell everyone!" Capturing the impact of public and patient involvement in music therapy and dementia research through songwriting.Dementia (London, England) · 2025Article
- Public and participant involvement as a pathway to inclusive dementia research.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- "I Want to Do Something" - Exploring What Makes Activities Meaningful for Community-Dwelling People Living With Dementia: A Focused Ethnographic Study.Qualitative health research · 2024Article
- Developing a framework of concerns from people living with frailty, for the Measure Yourself Concerns and Wellbeing (MYCaW) person-centred outcome measure.BMJ open quality · 2024Article
- Discussing methodological gaps in psychosocial intervention research for dementia: an opinion article from the INTERDEM Methodology Taskforce guided by the MRC framework.Frontiers in dementia · 2024Article
- Development of an item pool for a patient reported outcome measure of resilience for people living with dementia.Journal of patient-reported outcomes · 2023Article
- Life satisfaction among persons living with dementia and those without dementia.Journal of the American Geriatrics Society · 2023Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople with dementia are often marginalized and excluded from influence, also in relation to dementia research. There is, however, a growing requirement for inclusion through Patient and Public Involvement (PPI), but there is still limited knowledge on how researchers can fully benefit from the involvement of people with dementia in the development and testing of psychosocial interventions. This paper describes the results of a pan-European consultation with people with dementia, synthesizing their views on outcomes of psychosocial interventions.
objectiveTo involve people with dementia in establishing what are meaningful outcomes when participating in psychosocial interventions. SETTING AND
participantsConsultations took place at four divergent sites across Europe, involving twenty-five people with dementia from nine European countries.
methodsThe methods used for the consultation were developed through an iterative process involving people with dementia. Data from the consultation were analysed from a thematic analysis approach.
resultsThe results suggested that people with dementia wish to participate in interventions that enhance their well-being, confidence, health, social participation and human rights. This highlights a need for improvements in psychosocial research to capture these outcomes. DISCUSSION AND
conclusionsInvolving people with dementia in discussions of psychosocial interventions has enhanced our understanding about meaningful outcome measures in research and methods of data collection. This study suggests that new outcome measures in psychosocial research are needed where concepts of positive psychology and social health can guide innovation and outcome measurement.
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