ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Public and patient involvement in quantitative health research: A statistical perspective.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- A public and patient consultation process as an aid to design a person-centred randomized clinical trial.Health expectations : an international journal of public participation in health care and health policy · 2021Trial
- Perception of physiotherapy researchers about patient and public involvement in health research design and planning in Nigeria.BMC health services research · 2026Article
- Including patient and public contributors on clinical trial Independent Data Monitoring Committees (IDMCs).Trials · 2026Article
- Evaluation of a 'Research Methods' Training Course for Novice Lived Experience Researchers.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Gaps in the Engagement of People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Health Research: A Qualitative Study of Untapped Potential.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Equality, equity, diversity, and inclusion principles: how should we apply these to statistical methodology research?BMC medical research methodology · 2025Article
- Involving People With Lived Experience in Electronic Health Record Database Studies Reflections and Learning From the CHOOSE Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- "The power imbalance was blown out the window": developing and implementing creative workshops to enhance communication of statistics in patient and public involvement in clinical trials.Research involvement and engagement · 2024Article
- Article
- Is There Evidence of an Association Between Acute Health Care Utilization and Function in Older Adults Over Time? A Population-Based Cohort Study.Innovation in aging · 2023Article
- Four Aspects Affecting Health Economic Decision Models and Their Validation.PharmacoEconomics · 2022Article
- Association between work status and depression in informal caregivers: a collaborative modelling approach.European journal of public health · 2022Article
- Patient-reported outcomes and target effect sizes in pragmatic randomized trials in ClinicalTrials.gov: A cross-sectional analysis.PLoS medicine · 2022Review
- The public and patient involvement imperative in Ireland: Building on policy drivers.Frontiers in public health · 2022Article
- Article
- Designing Discrete Choice Experiments Using a Patient-Oriented Approach.The patient · 2021Article
- Stakeholder involvement in the development of trial material for a clinical trial.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Article
- Human Factors and Requirements of People with Cognitive Impairment, Their Caregivers, and Healthcare Professionals for mHealth Apps Including Reminders, Games, and Geolocation Tracking: A Survey-Questionnaire Study.Journal of Alzheimer's disease reports · 2021Article
- PPI in research: a reflection from early stage researchers.Research involvement and engagement · 2019Article
Corrections and comments
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Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe majority of studies included in recent reviews of impact for public and patient involvement (PPI) in health research had a qualitative design. PPI in solely quantitative designs is underexplored, particularly its impact on statistical analysis. Statisticians in practice have a long history of working in both consultative (indirect) and collaborative (direct) roles in health research, yet their perspective on PPI in quantitative health research has never been explicitly examined.
objectiveTo explore the potential and challenges of PPI from a statistical perspective at distinct stages of quantitative research, that is sampling, measurement and statistical analysis, distinguishing between indirect and direct PPI.
conclusionsStatistical analysis is underpinned by having a representative sample, and a collaborative or direct approach to PPI may help achieve that by supporting access to and increasing participation of under-represented groups in the population. Acknowledging and valuing the role of lay knowledge of the context in statistical analysis and in deciding what variables to measure may support collective learning and advance scientific understanding, as evidenced by the use of participatory modelling in other disciplines. A recurring issue for quantitative researchers, which reflects quantitative sampling methods, is the selection and required number of PPI contributors, and this requires further methodological development. Direct approaches to PPI in quantitative health research may potentially increase its impact, but the facilitation and partnership skills required may require further training for all stakeholders, including statisticians.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.