ArticleAnnals of translational medicine2018
Transforming research: engaging patient advocates at all stages of cancer research.
Article in Annals of translational medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed.
- Opportunities to Enhance Cancer Research through Advocate-Researcher Partnerships.Cancer research · 2026Article
- Translational human gut microbiome research: What are the missing pieces of the puzzle?Journal of translational medicine · 2026Review
- Engaging Patient Advocates to Reduce Breast Cancer Disparities: Opportunities to Advance Breast Cancer Research and Engagement.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Patient Advocate-Trainee Engagement in Oncology Education: Insights from a Short Pilot Survey.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- A human-centered, participatory design approach to cancer research training.Frontiers in public health · 2026Article
- The MBCRC Advocate Researcher Program (MARP): connecting advocates and researchers as collaborative partners in cancer research.NPJ breast cancer · 2025Article
- Reasons for Not Enrolling in a Randomized Clinical Trial and Patient Preferences for Knee Osteoarthritis Treatment.Journal of patient experience · 2025Article
- Bridging gaps in cancer care for young adults: A collaborative e-learning initiative for oncology nurses.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2025Article
- Sharing is caring: a network collaborative approach to identify and address barriers in accessing clinical trials in adolescents and young adults with leukemia and lymphoma.Hematology. American Society of Hematology. Education Program · 2024Review
- Article
- Whose Signals Are Being Amplified? Toward a More Equitable Clinical Psychophysiology.Clinical psychological science : a journal of the Association for Psychological Science · 2024Article
- A community engagement training program for basic and translational cancer researchers.Cancer causes & control : CCC · 2023Article
- Advances in the clinical management of high-risk Wilms tumors.Pediatric blood & cancer · 2023Review
- On a pathway to resigned acceptance: Patients' experiences of living with symptom clusters in oral cancer.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2023Article
- Utilization of an Electronic Patient-Reported Outcome Platform to Evaluate the Psychosocial and Quality-of-Life Experience Among a Community Sample of Ovarian Cancer Survivors.JCO clinical cancer informatics · 2022Article
- Improving the odds together: a framework for breast cancer research scientists to include patient advocates in their research.NPJ breast cancer · 2022Review
- Defining research and infrastructure priorities for cancer survivorship in Australia: a modified Delphi study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Article
- Challenges and Opportunities in Social Media Research in Gastroenterology.Digestive diseases and sciences · 2021Article
- Putting patients first: development of a patient advocate and general practitioner-informed model of patient-centred care.BMC health services research · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In recent years there has been a push to include patients and advocates in clinical research, including in clinical trial design and approval processes. Additionally, increased advocate-driven research funding has led to seats for advocates in the funding review process. However, despite advances that include having patients and advocates involved in clinical research projects that may directly, or eventually, affect their care and treatment, we have much further to go to make this a truly inclusionary participation in research. We have even further to go to actively incorporate patients and advocates throughout the research continuum. Here we review and present current programs and projects that have successfully incorporated patients and advocates into translational research, and propose mechanism and strategies to actively engage patients throughout the research continuum. Our goal in translational cancer research is to improve outcomes for cancer patients. To more successfully and quickly meet this objective we should incorporate patient driven research questions earlier in the process, specifically at the level of basic benchtop research.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.