ArticleJournal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association2018
Measuring the Impact of the Home Health Nursing Shortage on Family Caregivers of Children Receiving Palliative Care.
Article in Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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Who cites it
19 citing papers in PubMed, 51 citations in OpenAlex.
- The Secure Base in the Storm: How Parent-Child Bonds Shape Coping in Pediatric Cancer Caregiving.Pediatric reports · 2026Article
- When external factors limit care options for complex fetal and neonatal diagnoses.Journal of perinatology : official journal of the California Perinatal Association · 2025Review
- What are the greatest opportunities for innovation to improve access to and quality of palliative care services to children? A qualitative interview study.BMC palliative care · 2025Article
- Safe Enough: Subjective Determinations in Hospital Discharge for Patients With Medical Complexity.Pediatrics · 2025Article
- Understaffed Home Nursing and Wellbeing of Families of Children with Medical Complexity.Children (Basel, Switzerland) · 2025Article
- Review
- The Home-Based Experiences of Palliative and Hospice Care for Children and Caregivers (EXPERIENCE) Measure: Evaluation of Psychometric Properties.Journal of pain and symptom management · 2024Article
- Methods used to account for caregivers' sex and gender within studies examining the financial burden of caregivers of children and adolescents : Results from a scoping review.ClinicoEconomics and outcomes research : CEOR · 2024Article
- "The gender gap in caring for children with medical complexity".Journal of perinatology : official journal of the California Perinatal Association · 2023Article
- What does 'good' palliative care look like for children and young people? A qualitative study of parents' experiences and perspectives.Palliative medicine · 2023Article
- Length of Stay and Barriers to Discharge for Technology-Dependent Children During the COVID-19 Pandemic.Hospital pediatrics · 2023Article
- Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.Children (Basel, Switzerland) · 2022Article
- Psychosocial Considerations for the Child with Rare Disease: A Review with Recommendations and Calls to Action.Children (Basel, Switzerland) · 2022Review
- Home Health Care Utilization in Children With Medicaid.Pediatrics · 2022Article
- Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach.BMC palliative care · 2021Article
- Home nursing for children with home mechanical ventilation in the United States: Key informant perspectives.Pediatric pulmonology · 2020Article
- Discharge Before Return to Respiratory Baseline in Children With Neurologic Impairment.Journal of hospital medicine · 2020Article
- State Variation in Posthospital Home Nursing for Commercially Insured Medically Complex Children.Pediatrics · 2020Article
- Mothers caring for technology-dependent children at home: What is most helpful and least helpful?Applied nursing research : ANR · 2019Article
Corrections and comments
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Authors and funding
7 authors at 1 institution in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The national nursing shortage translates into a gap in home nursing care available to children with complex, chronic medical conditions and their family caregivers receiving palliative care consultations. A total of 38 home health nursing surveys were completed by families receiving pediatric palliative care consultation services at a freestanding children's hospital in the Midwest. The gap in the average number of nursing hours allotted versus received was 40 h/wk per family, primarily during evening hours. Parents missed an average of 23 hours of employment per week to provide hands-on nursing care at home, ranking stress regarding personal employment due to nursing shortage at 6.2/10. Families invested an average of 10 h/mo searching for additional nursing coverage and often resorted to utilizing more than 6 different home nurse coverage personnel per month. Families reported multiple delays to hospital discharges (mean, 15 days per delay) due to inability to find home nursing coverage. Respiratory technology and lack of Medicaid coverage (
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.