Evidence map›Paper›PMID 29906697›Full record

SynthesisEpilepsy & behavior : E&B2018

Epilepsy misconceptions and stigma reduction interventions in sub-Saharan Africa, a systematic review.

Mark Kaddumukasa, Martin N Kaddumukasa, William Buwembo, Ian G Munabi, Carol Blixen, Samden Lhatoo, Nelson Sewankambo, Elly Katabira, Martha Sajatovic

Registry-linked trialAbstract readSystematic Review
In one paragraph

Synthesis in Epilepsy & behavior : E&B, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06634901 (The Impact of Health Literacy Education on Knowledge, Treatment Adherence and Stigma Among Adolescents With Epilepsy), which is not on this map. Cited by 44 papers.

0numbers the graph read from it
0cells of the map it votes in
44citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06634901 nanot yet recruitingnot on this mapstarted 2026, after this paper: background citation

The Impact of Health Literacy Education on Knowledge, Treatment Adherence and Stigma Among Adolescents With Epilepsy

TypeinterventionalSponsorDuke UniversityRan2026 to 2027Enrolled60ConditionsEpilepsyArmsHealth Literacy Educational Session- Comparator, Health Literacy Educational Session
3 · Its place in the literature

Who cites it

44 citing papers in PubMed.

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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

9 authors.

Mark KaddumukasaDepartment of Medicine, School of Medicine, College of Health Sciences, Makerere University, P.O. Box 7072, Kampala, Uganda. Electronic address: mkaddumukasa@chs.mak.ac.ug.
Martin N KaddumukasaDepartment of Medicine, School of Medicine, College of Health Sciences, Makerere University, P.O. Box 7072, Kampala, Uganda.
William BuwemboSchool of Biomedical Sciences, Makerere University, P.O. Box 7072, Kampala, Uganda.
Ian G MunabiSchool of Biomedical Sciences, Makerere University, P.O. Box 7072, Kampala, Uganda. Electronic address: imunabi@chs.mak.ac.ug.
Carol BlixenNeurological and Behavioral Outcomes Center, University Hospitals Cleveland Medical Center & Case Western Reserve University School of Medicine, 11100 Euclid Avenue, Cleveland, OH 44106, USA.. Electronic address: cxb28@case.edu.
Samden LhatooEpilepsy Center, UH Case Medical Center, 11100 Euclid Avenue, Cleveland, OH, 44106, USA. Electronic address: samden.Lhatoo@UHhospitals.org.
Nelson SewankamboDepartment of Medicine, School of Medicine, College of Health Sciences, Makerere University, P.O. Box 7072, Kampala, Uganda.
Elly KatabiraDepartment of Medicine, School of Medicine, College of Health Sciences, Makerere University, P.O. Box 7072, Kampala, Uganda.
Martha SajatovicNeurological and Behavioral Outcomes Center, University Hospitals Cleveland Medical Center & Case Western Reserve University School of Medicine, 11100 Euclid Avenue, Cleveland, OH 44106, USA.. Electronic address: Martha.Sajatovic@UHhospitals.org.

Funding

Seizure frequency, Quality of Life and stigma reduction in people living with epilepsyK43TW010401 · FIC · MAKERERE UNIVERSITY COLLEGE OF HEALTH SCIENCES · PI KADDUMUKASA, MARK · 2017 to 2021
$589k
FIC NIH HHS K43 TW010401
6 · The paper itself

Abstract

objectiveThis systematic review identified papers that described epilepsy misconceptions or stigma in sub-Saharan Africa (SSA) and research interventions focused on reducing these misconceptions. MATERIALS AND

methodsPublications in the English language from January 2000 to October 2017 that described original research conducted in SSA on misconceptions about epilepsy were utilized.

resultsTwenty-three publications were identified. Studies were from Nigeria (N = 4), Cameroon (N = 4), Uganda (N = 3), Zambia (N = 2), Ethiopia (N = 2), Tanzania (N = 2), Kenya (N = 2), Ghana, Zimbabwe, Benin, and Mali (N = 1 each). The studies included assessments of misconceptions among healthcare providers and medical students (N = 3), high school students (N = 2), teachers (N = 2), the general public (N = 10), people with epilepsy (N = 7), and traditional healers (N = 1). Only two studies had stigma-focused interventions. Majority of the studies reported limitations to socialization with people with epilepsy and various beliefs associated with epilepsy.

conclusionsEpilepsy misconceptions, stigmatizing cultural beliefs, and perceptions were widely prevalent in SSA, and there are a few studies targeting epilepsy stigma. Existing stigma-reduction educational approaches may be impractical for general population implementation. Scalable approaches to reduce stigma are urgently needed within SSA.

Indexed as

Attitude of Health PersonnelHealth Knowledge, Attitudes, PracticeSocial StigmaStereotypingAfrica South of the SaharaEpilepsyHealth PersonnelHumansStudentsStudents, MedicalAttitudesEpilepsyMisconceptionsSeizuresStigma

Identifiers

PMID29906697
PMCPMC6355646

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.