ArticleDiabetic medicine : a journal of the British Diabetic Association2018
The relationship of Type 1 diabetes self-management barriers to child and parent quality of life: a US cross-sectional study.
Article in Diabetic medicine : a journal of the British Diabetic Association, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
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Who cites it
18 citing papers in PubMed.
- Impact of family-centered tailoring of pediatric diabetes self-management resources.Pediatric diabetes · 2019Trial
- Treatment burden, healthcare experiences, and health-related quality of life among youth with chronic kidney disease treated for hypertension.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- The Mediating Effects of Diabetes Self-Management on the Relationship Between Diabetes Distress and Quality of Life Among School-Age Children With Type 1 Diabetes Mellitus During the COVID-19 Pandemic.Pediatric diabetes · 2026Article
- The Effect of Parental Collaboration on Diabetes Self-efficacy, Quality of Life and HbA1c Level in Adolescents Diagnosed with Type 1 DiabetesJournal of clinical research in pediatric endocrinology · 2025Article
- Hybrid CNN-GRU Model for Real-Time Blood Glucose Forecasting: Enhancing IoT-Based Diabetes Management with AI.Sensors (Basel, Switzerland) · 2024Article
- Humanistic burden of pediatric type 1 diabetes on children and informal caregivers: systematic literature reviews.Diabetology & metabolic syndrome · 2024Review
- Blood Glucose Level Time Series Forecasting: Nested Deep Ensemble Learning Lag Fusion.Bioengineering (Basel, Switzerland) · 2023Article
- Lessons Learned From COVID-19 Lockdown: An ASPED/MENA Study on Lifestyle Changes and Quality of Life During Ramadan Fasting in Children and Adolescents Living With Type 1 Diabetes.Clinical medicine insights. Endocrinology and diabetes · 2023Article
- Quantifying Input Behaviors That Influence Clinical Outcomes in Diabetes and Other Chronic Illnesses.Journal of diabetes science and technology · 2022Article
- The Relationship between Diabetes Family Conflict and Parental Conflict on Problem Recognition in Illness Self-Management among Individuals with Type 1 Diabetes Mellitus.International journal of environmental research and public health · 2021Article
- The influence of hypoglycemia on the specific quality of life in type 2 diabetes mellitus: a comparative cross-sectional study of diabetics with and without hypoglycemia in Xi'an, China.Health and quality of life outcomes · 2021Article
- Quality of Life Differences in Pre- and Post-Educational Treatment in Type 1 Diabetes Mellitus During COVID-19.Diabetes, metabolic syndrome and obesity : targets and therapy · 2021Article
- Initial experiences of adolescents and young adults with type 1 diabetes and high-risk glycemic control after starting flash glucose monitoring - a qualitative study.Journal of diabetes and metabolic disorders · 2020Article
- Factors associated with health psychology use in pediatric type 1 diabetes.Diabetes research and clinical practice · 2020Article
- Type 1 Diabetes Mellitus in Pediatric Patients and Its Impact on Relationships in the Family Environment.Diabetes, metabolic syndrome and obesity : targets and therapy · 2020Article
- Effect of 6 months' flash glucose monitoring in adolescents and young adults with type 1 diabetes and suboptimal glycaemic control: managing diabetes in a 'flash' randomised controlled trial protocol.BMC endocrine disorders · 2019Article
- Flash Glucose Monitoring Technology Impact on Diabetes Self-Care Behavior.American journal of lifestyle medicineReview
- Quality of Life Among Parents of Jordanian Children and Adolescents With Type 1 Diabetes Mellitus.Sage open pediatricsArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
aimFamilies of children and adolescents with Type 1 diabetes experience self-management challenges that negatively impact diabetes control. This study assesses whether self-management challenges are also associated with quality of life (QOL) for children and adolescents with Type 1 diabetes and their parents.
methodsChildren aged 8-12 years (n = 135), adolescents aged 13-16 years (n = 132) and their parents completed QOL assessments (diabetes-specific QOL from the PedsQL Diabetes Module or the Family Impact Module, both scaled 0-100) and a validated survey of up to six self-management barriers [PRISM; scaled 1 (low) to 5 (high)]. Regression coefficients were calculated to assess the association of self-management barriers with child and adolescent diabetes-specific QOL or parent QOL, including interaction effects to assess the stability of the associations.
resultsMean duration of diabetes was 4.7 years for children and 6.1 years for adolescents. The majority of children and adolescents did not meet target values for glycaemic control. All barriers but one (Healthcare Team Interactions) were associated with lower diabetes-specific QOL for children and adolescents, as well as lower QOL for parents (all P < 0.05). Barrier scores that were 1 unit higher were associated with diabetes-specific QOL that was 3.7-5.1 points lower for children and 5.8-8.8 points lower for adolescents, as well as QOL that was 6.0-12.6 points lower for parents. Diabetes-specific QOL was most strongly associated with 'Denial of Disease and Its Consequences' for children and with 'Regimen Pain and Bother' for adolescents. Parent QOL was most strongly associated with 'Understanding and Organizing Care'. Associations were stable across numerous demographic and disease factors.
conclusionsSingle-unit differences in self-management barrier scores are associated with clinically meaningful differences in QOL for children and parents. Interventions specifically tailored to address individual self-management barriers may improve both diabetes control and QOL.
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