Evidence map›Paper›PMID 29889279›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2018

Using mobile location data in biomedical research while preserving privacy.

Daniel M Goldenholz, Shira R Goldenholz, Kaarkuzhali B Krishnamurthy, John Halamka, Barbara Karp, Matthew Tyburski, David Wendler, Robert Moss, Kenzie L Preston, William Theodore

Abstract read
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Digital biomarkers from geolocation data in bipolar disorder and schizophrenia: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2019
    Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Daniel M GoldenholzClinical Epilepsy Section, NINDS, NIH.
Shira R GoldenholzEpilepsy Division, Beth Israel Deaconess Medical Center.
Kaarkuzhali B KrishnamurthyEpilepsy Division, Beth Israel Deaconess Medical Center.
John HalamkaDepartment of Emergency Medicine, Beth Israel Deaconess Medical Center.
Barbara KarpCombined NeuroScience IRB, Office of Clinical Director, NINDS, NIH.
Matthew TyburskiIntramural Research Program, National Institute on Drug Abuse, NIH.
David WendlerSection on Research Ethics, Department of Bioethics, NIH.
Robert MossSeizureTracker LLC.
Kenzie L PrestonIntramural Research Program, National Institute on Drug Abuse, NIH.
William TheodoreClinical Epilepsy Section, NINDS, NIH.

Funding

Real-Time Assessment of Drug Use, Along with Mental States and EnvironmentsZIADA000499 · NIDA · NATIONAL INSTITUTE ON DRUG ABUSE · PI EPSTEIN, DAVID · 2009 to 2025
$19.9M
Physiologic And Pharmacologic Studies In EpilepsyZIANS002236 · NINDS · NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE · PI THEODORE, WILLIAM · 2009 to 2020
$14.2M
Research and clinical care without informed consentZIACL010537 · CLC · CLINICAL CENTER · PI WENDLER, DAVID S · 2014 to 2025
$0k
6 · The paper itself

Abstract

Location data are becoming easier to obtain and are now bundled with other metadata in a variety of biomedical research applications. At the same time, the level of sophistication required to protect patient privacy is also increasing. In this article, we provide guidance for institutional review boards (IRBs) to make informed decisions about privacy protections in protocols involving location data. We provide an overview of some of the major categories of technical algorithms and medical-legal tools at the disposal of investigators, as well as the shortcomings of each. Although there is no "one size fits all" approach to privacy protection, this article attempts to describe a set of practical considerations that can be used by investigators, journal editors, and IRBs.

Indexed as

ConfidentialityData CollectionEthics Committees, ResearchBig DataBiomedical ResearchData AnonymizationGeographic Information SystemsHumansTelemedicine

Identifiers

PMID29889279
PMCPMC6188531

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.