ArticleCulture, health & sexuality2019
HIV-related 'conspiracy beliefs': lived experiences of racism and socio-economic exclusion among people living with HIV in New York City.
Article in Culture, health & sexuality, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 39 citations in OpenAlex.
- Ubiquitous Yet Unclear: A Systematic Review of Medical Mistrust.Behavioral medicine (Washington, D.C.)Pooled it
- "I Felt Somewhat Cheated and Deceived When that Roadblock Came": PrEP-Related Medical Mistrust, Distrust, and Misinformation Among Black Sexual Minority Men.AIDS and behavior · 2026Article
- PrEP-Related Medical, Structural and Institutional Mistrust among a Socioeconomically Diverse Sample of Black, Latine, Asian, and White Young Sexual Minority Men: Lived Experiences of Intersectional Inequity.AIDS and behavior · 2026Article
- Characteristics of healthcare providers, healthcare systems, and patient strategies related to medical mistrust among black and African Americans.BMC primary care · 2025Article
- Exploring the determinants of health service utilization among people living with HIV: a qualitative study in Iran.BMC health services research · 2023Article
- Rapid qualitative analysis approach to stakeholder and client interviews to inform mobile-based HIV testing in the U.S. Deep South.Archives of public health = Archives belges de sante publique · 2023Article
- Using an Intersectional Framework to Understand the Challenges of Adopting Pre-exposure Prophylaxis (PrEP) Among Young Adult Black Women.Sexuality research & social policy : journal of NSRC : SR & SP · 2022Article
- Medical Mistrust and Stigma Associated with COVID-19 Among People Living with HIV in South Africa.AIDS and behavior · 2021Article
- Correlates of PrEP Uptake Among Young Sexual Minority Men and Transgender Women in New York City: The Need to Reframe "Risk" Messaging and Normalize Preventative Health.AIDS and behavior · 2021Article
- Barriers and Facilitators to Promoting Resilience to HIV/AIDS: A Qualitative Study on the Lived Experiences of HIV-Positive, Racial and Ethnic Minority, Middle-Aged and Older Men Who Have Sex with Men from Ontario, Canada.International journal of environmental research and public health · 2021Article
- Impact of dedicated women's outreach workers (WOWs) on recruitment of women in ACTG clinical studies.HIV research & clinical practice · 2021Article
- Disinformation, Misinformation and Inequality-Driven Mistrust in the Time of COVID-19: Lessons Unlearned from AIDS Denialism.AIDS and behavior · 2020Article
- Considerations for employing intersectionality in qualitative health research.Social science & medicine (1982) · 2020Review
- "Worn out": Coping strategies for managing antiretroviral treatment fatigue among urban people of color living with HIV who were recently disengaged from outpatient HIV care.Journal of HIV/AIDS & social services · 2020Article
- Conspiracy Beliefs Are Not Necessarily a Barrier to Engagement in HIV Care Among Urban, Low-Income People of Color Living with HIV.Journal of racial and ethnic health disparities · 2018Article
- Whose Responsibility Is It to Dismantle Medical Mistrust? Future Directions for Researchers and Health Care Providers.Behavioral medicine (Washington, D.C.)Article
- Article
- "If They Give Their Mind to HIV, They Don't Last as Long": An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered Care.Global qualitative nursing researchArticle
- Towards a More Inclusive and Dynamic Understanding of Medical Mistrust Informed by Science.Behavioral medicine (Washington, D.C.)Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
HIV-related 'conspiracy beliefs' include ideas about the genocidal origin of HIV and the nature and purpose of HIV-related medications. These ideas have been widely documented as affecting myriad health behaviours and outcomes, including birth control use and HIV testing. Most HIV-related research has quantitatively explored this phenomenon, and further qualitative research is necessary to better understand the complexity of these beliefs as articulated by those who endorse them. Moreover, public health in general has over-emphasised the role of the Tuskegee Syphilis Study in explaining mistrust, rather than focus on ongoing social inequalities. Twenty-seven semi-structured interviews were conducted with low-income Black and Latinx people living with HIV who were currently, or had been recently, disengaged from HIV medical care. Beliefs about the role and intentions of the government and pharmaceutical industry in the epidemic highlighted the racism and classism experienced by participants. Notably, however, HIV care providers were not perceived as part of the government-pharmaceutical collusion. Interventions should focus on fostering positive beliefs about HIV medication and building trust between HIV care providers and populations that have experienced ongoing social and economic exclusion. Replacing the phrase 'conspiracy beliefs' with more descriptive terms, such as HIV-related beliefs, could avoid discrediting people's lived experiences.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.