ArticleJournal of bioethical inquiry2018
Representative Claims in Healthcare: Identifying the Variety in Patient Representation.
Article in Journal of bioethical inquiry, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
7 citing papers in PubMed.
- Exploring Patient Organization Involvement in Stem Cell Research: Insights from the Lifeworld.Journal of bioethical inquiry · 2026Article
- [Representation and representativeness in health councils: between formalization and participatory legitimacy].Cadernos de saude publica · 2025Article
- Representation in participatory health care decision-making: Reflections on an Application-Oriented Model.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Collective forward-looking responsibility of patient advocacy organizations: conceptual and ethical analysis.BMC medical ethics · 2021Article
- Understanding patient experiences: The powerful source of written patient stories.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Legislating Patient Representation: A Comparison Between Austrian and German Regulations on Self-Help Organizations as Patient Representatives.Journal of bioethical inquiry · 2018Article
- One For All, All For One? Collective Representation in Healthcare Policy.Journal of bioethical inquiry · 2018Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In many countries patient involvement is high on the healthcare policy agenda, which includes patient representation in collective decision-making. Patient organizations are generally considered to be important representatives of patients. Other actors also claim to represent patients in decision-making, such as politicians, healthcare professionals, and client advisory councils. In this paper we take a broad view of patient representation, examining all the actors claiming to represent patients in the Dutch debate on the decentralization of care. We conclude that variety in forms of representation could help do justice to the variety of patient preferences. In addition we conclude that in order to ensure the democratic quality of patient representation, actors making representative claims have to reflect on how their claims relate to each other and how they can ensure authorization and accountability in the representative relationship with those they claim to represent.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.