Evidence map›Paper›PMID 29881760›Full record

ArticleEGEMS (Washington, DC)2018

A Systematic Method for Exploring Data Attributes in Preparation for Designing Tailored Infographics of Patient Reported Outcomes.

Adriana Arcia, Janet Woollen, Suzanne Bakken

Abstract readCase Reports
In one paragraph

Article in EGEMS (Washington, DC), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Information visualizations of symptom information for patients and providers: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2019
    Pooled it
  2. Article
  3. Seeing things the same way: perspectives and lessons learned from research-design collaborations.Journal of the American Medical Informatics Association : JAMIA · 2024
    Article
  4. Seriously ill pediatric patient, parent, and clinician perspectives on visualizing symptom data.Journal of the American Medical Informatics Association : JAMIA · 2021
    Article
  5. Article
  6. Visual analogies, not graphs, increase patients' comprehension of changes in their health status.Journal of the American Medical Informatics Association : JAMIA · 2020
    Article
  7. Article
  8. Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Adriana ArciaColumbia University, US.ORCID 000-0002-4773-7195
Janet WoollenColumbia University, US.
Suzanne BakkenColumbia University, US.ORCID 0000-0001-6202-6001

Funding

Washington Heights Initiative Community-based Comparative Effectiveness ResearchR01HS019853 · AHRQ · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI BAKKEN, SUZANNE · 2010 to 2010
$8.9M
Reducing Health Disparities Through Informatics - Genomics SupplementT32NR007969 · NINR · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI SUZANNE BAKKEN, Rebecca Schnall · 2002 to 2026
$7.9M
Research Education CoreP30AG059303 · NIA · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI ADAM M BRICKMAN, Jennifer Jaie Manly · 2018 to 2026
$6.0M
New York City Hispanic Dementia Caregiver Research Program (NHiRP)R01NR014430 · NINR · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI BAKKEN, SUZANNE, LUCHSINGER, JOSE ALEJANDRO · 2013 to 2017
$2.9M
WICER 4UR01HS022961 · AHRQ · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI BAKKEN, SUZANNE · 2013 to 2013
$750k
AHRQ HHS R01 HS019853AHRQ HHS R01 HS022961NIA NIH HHS P30 AG059303NINR NIH HHS R01 NR014430NINR NIH HHS T32 NR007969
6 · The paper itself

Abstract

contextTailored visualizations of patient reported outcomes (PROs) are valuable health communication tools to support shared decision making, health self-management, and engagement with research participants, such as cohorts in the NIH Precision Medicine Initiative. The automation of visualizations presents some unique design challenges. Efficient design processes depend upon gaining a thorough understanding of the data prior to prototyping. CASE DESCRIPTION: We present a systematic method to exploring data attributes, with a specific focus on application to self-reported health data. The method entails a) determining the meaning of the variable to be visualized, b) identifying the possible and likely values, and c) understanding how values are interpreted.

findingsWe present two case studies to illustrate how this method affected our design decisions particularly with respect to outlier and non-missing zero values. MAJOR THEMES: The use of a systematic method made our process of exploring data attributes easily manageable. The limitations of the data can narrow design options but can also prompt creative solutions and innovative design opportunities.

conclusionA systematic method of exploration of data contributes to an efficient design process, uncovers design opportunities, and alerts the designer to design challenges.

Indexed as

Data AttributesInfographicsInformation VisualizationPatient Centered CarePatient Reported OutcomesPrecision Medicine

Identifiers

PMID29881760
PMCPMC5983055

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.