ArticleEGEMS (Washington, DC)2017
Framework To Guide The Collection And Use Of Patient-Reported Outcome Measures In The Learning Healthcare System.
Article in EGEMS (Washington, DC), 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
45 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review.Frontiers in pediatrics · 2020Pooled it
- Measurement invariance of the Pediatric Quality of life index in a child and adolescent mental health population.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Health information systems integrating patient-reported outcomes and experience: a scoping review.Journal of patient-reported outcomes · 2026Article
- Integrating Patient-Reported Outcomes into Atrial Fibrillation Care Pathways: Implementation Challenges, Health System Implications, and Future Directions.Healthcare (Basel, Switzerland) · 2026Review
- Advancing the Implementation of Patient-Centered Outcomes in Rehabilitation Learning Health Systems: Insights From the 2024 LeaRRn Summit.Archives of physical medicine and rehabilitation · 2026Article
- Ethical integration of patient-reported outcomes and digital biomarkers in AI healthcare models: an expert consensus framework.Frontiers in digital health · 2026Article
- Using latent class analysis to identify subgroups of postoperative older adults.SAGE open medicine · 2026Article
- The problem of missing data for learning health systems focused on first-episode psychosis.Schizophrenia research · 2025Article
- Assessing Whole-Person Outcomes During Routine Clinical Care: A Rapid Scoping Review.Medical care · 2024Article
- Exploring the barriers, facilitators and needs to use patient outcomes in district nursing care: A multi-method qualitative study.Journal of clinical nursing · 2024Article
- How patient-reported outcomes and experience measures (PROMs and PREMs) are implemented in healthcare professional and patient organizations? An environmental scan.Journal of patient-reported outcomes · 2024Article
- Article
- Transgender and Non-Binary Surgery Registry: Building a Patient-Focused Registry for Genital Gender Affirming Surgery.Transgender health · 2024Article
- Validity of Patient-Reported Outcome Measures in Evaluating Nerve Damage Following Chemotherapy.JAMA network open · 2024Article
- Clinical Research Informatics: a Decade-in-Review.Yearbook of medical informatics · 2024Review
- Utilizing a learning health system to capture real-world patient data: Application of the reliable change index to evaluate and improve the outcome of a pain rehabilitation program.Pain practice : the official journal of World Institute of Pain · 2024Article
- European society for trauma and emergency surgery member-identified research priorities in emergency surgery: a roadmap for future clinical research opportunities.European journal of trauma and emergency surgery : official publication of the European Trauma Society · 2024Review
- Achieving Diagnostic Excellence: Roadmaps to Develop and Use Patient-Reported Measures With an Equity Lens.International journal of health policy and management · 2024Article
- Article
- How to make PROMs work: qualitative insights from leaders at United States hospitals with successful PROMs programs.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundWeb-based collection of patient-reported outcome measures (PROMs) in clinical practice is expanding rapidly as electronic health records include web portals for patients to report standardized assessments of their symptoms. As the value of PROMs in patient care expands, a framework to guide the implementation planning, collection, and use of PROs to serve multiple goals and stakeholders is needed.
methodsWe identified diverse clinical, quality, and research settings where PROMs have been successfully integrated into care and routinely collected and analyzed drivers of successful implementation. Findings are based on key informant interviews with 46 individuals representing 38 organizations, of whom 40 participated in a webinars series, and 25 attended an in-person workshop designed to enable broad stakeholder input, review and refinement of the proposed PROMs implementation model. Stakeholders identified differing uses of PROMs to support: 1) individual patient care decisions, 2) quality improvement initiatives, 3) payer mandates, and 4) population health and research.
resultsThe implementation framework and steps that are consistently identified by stakeholders as best practices to guide PROM capture and use are described. Of note, participants indicate that web-based informatics tools are necessary but not sufficient for PROM use, suggesting that successful PROM implementation requires integration into clinic operations and careful planning for user's analytic needs. Each of the four identified uses may require implementation modifications at each step to assure optimal use.
conclusionsThe proposed framework will guide future PROM implementation efforts across learning health care systems to assure that complete PROMs are captured at the correct time, and with associated risk factors, to generate meaningful information to serve diverse stakeholders.
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.