Evidence map›Paper›PMID 29876506›Full record

ArticleInternational journal of cardiology. Heart & vasculature2018

"Will she live a long happy life?" Parents' concerns for their children with Fontan circulation.

Karin du Plessis, Rebecca Peters, Ingrid King, Kirsty Robertson, Jonathan Mackley, Rachel Maree, Tracy Stanley, Louise Pickford, Brian Rose, Matthew Orchard and 2 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in International journal of cardiology. Heart & vasculature, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
0.8field-weighted citation impact, top 27% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 15 citations in OpenAlex.

  1. Unplanned Readmissions due to Pleural Effusion Following the Fontan Operation.World journal for pediatric & congenital heart surgery · 2026
    Article
  2. Wellbeing and quality of life among parents of individuals with Fontan physiology.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  3. Article
  4. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 2 institutions in 1 country.

Karin du PlessisMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Rebecca PetersMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Ingrid KingMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Kirsty RobertsonAustralian and New Zealand Fontan Advisory Committee.
Jonathan MackleyAustralian and New Zealand Fontan Advisory Committee.
Rachel MareeAustralian and New Zealand Fontan Advisory Committee.
Tracy StanleyAustralian and New Zealand Fontan Advisory Committee.
Louise PickfordAustralian and New Zealand Fontan Advisory Committee.
Brian RoseAustralian and New Zealand Fontan Advisory Committee.
Matthew OrchardAustralian and New Zealand Fontan Advisory Committee.
Helen StewartAustralian and New Zealand Fontan Advisory Committee.
Yves d'UdekemMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Murdoch Children's Research Institute · AURoyal Children's Hospital · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFamilies of children at the worst end of the congenital heart disease endure a significant burden which is often not clearly delineated in the clinical literature. We examined the greatest concerns of parents whose children have a Fontan circulation.

methodsParents (

resultsThe greatest concerns for parents of a child with a Fontan circulation were centered on fear of death for their child and psychosocial well-being, followed by lesser themes around anti-coagulation use, pregnancy and financial burdens.

conclusionsFear of death and the psychological well-being of their children were the main parental concerns. It highlights the need to clearly communicate information on outcomes to families, and the need for family-focused psychological interventions to improve the psychosocial functioning of both parents and young people.

Indexed as

ANZFAC, Australian and New Zealand Fontan Advisory CommitteeAVSD, Atrioventricular Septal DefectccTGA, Congenitally Corrected Transposition of the Great ArteriesCongenital heart diseaseDILV, Double Inlet Left VentricleDORV, Double Outlet Right VentricleFontanHLHS, Hypoplastic Left Heart SyndromeINR, International Normalized RatioParents of children with a Fontan circulationPLE, Protein Losing EnteropathyPTSD, Post-Traumatic Stress Disorder (PTSD)Qualitative research

Identifiers

PMID29876506
PMCPMC5988481
OpenAlexW2792619508

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.