ArticleScars, burns & healing
Parent-perceived isolation and barriers to psychosocial support: a qualitative study to investigate how peer support might help parents of burn-injured children.
Article in Scars, burns & healing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
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Who cites it
18 citing papers in PubMed, 42 citations in OpenAlex.
- Online psychosocial group intervention for parents: Positive effects on anxiety and depression.Journal of pediatric psychology · 2021Trial
- Evaluating the Visible Difference Parenting Toolkit: an ACT-based intervention to improve parental/carer stress and psychosocial well-being of carers of children with appearance affecting conditions and injuries.Journal of pediatric psychology · 2026Article
- The Visible Difference Parenting Toolkit: development of an ACT-based intervention to improve the well-being of parents and caregivers of children with appearance-affecting conditions and injuries.Journal of pediatric psychology · 2026Article
- The Validation of the 'CARe Burn Scale: Parent/Caregiver Form'-A Patient Reported Outcome Measure (PROM) Using Rasch Measurement Theory (RMT) to Assess Quality of Life for Parents or Caregivers Supporting a Child with a Burn Injury.European burn journal · 2025Article
- Body image and appearance distress among military veterans and civilians with an injury-related visible difference: A comparison study.PloS one · 2025Article
- Parental adjustment to a burn-injured child: how to support their needs in the aftermath of the injury.Frontiers in psychology · 2024Article
- 'Life should go on': a qualitative inquiry of parental reactions, experiences, and perceived needs following adolescents' recent traumatic exposure.European journal of psychotraumatology · 2024Article
- Parents' lived experience of living with and caring for their burn-injured child in a home setting.International journal of qualitative studies on health and well-being · 2023Article
- Understanding the Barriers and Enablers for Seeking Psychological Support following a Burn Injury.European burn journal · 2023Article
- Review
- Evaluating the Impact of a Paediatric Burn Club for Children and Families Using Group Concept Mapping.European burn journal · 2023Article
- Matching Qualitative Inquiry Design and Practice to Contemporary Burns Research Questions: Are We Getting It Right?European burn journal · 2022Article
- Parents' lived experiences of parental needs for support at a burn centre.International journal of qualitative studies on health and well-being · 2021Article
- Online psychosocial group intervention for adolescents with a chronic illness: A randomized controlled trial.Internet interventions · 2021Article
- Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention.Maternal and child health journal · 2020Article
- Towards improved psychological outcomes for survivors of burn injuries.Scars, burns & healingArticle
- A qualitative exploration of psychosocial specialists' experiences of providing support in UK burn care services.Scars, burns & healingArticle
- Parent-perceived isolation and barriers to psychosocial support: a qualitative study to investigate how peer support might help parents of burn-injured children.Scars, burns & healingArticle
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionBurn injuries can be traumatic and distressing for the affected child and family, with a prolonged period of recovery. This research explores parents' experiences of support following their child's injury and their thoughts on peer support specifically.
methodsThirteen semi-structured interviews were conducted with parents/caregivers, a mean of three years after their child's injury, either face-to-face or remotely. Responses were analysed using thematic analysis.
resultsAnalysis produced four themes and 11 sub-themes. These described parents' experiences of loss, change, isolation and access to psychosocial support. This paper focuses on themes of isolation and parents' access to psychosocial support. DISCUSSION: Findings indicate that parents access psychosocial support following their child's injury and often find it helpful; however, there is a prevailing sense of isolation. Parents often seek information online and find that this is lacking. Many parents reported that peer support would be valuable to them, particularly the sharing of experiential knowledge.
conclusionAn online resource may be beneficial for parents, but further research is needed to confirm the exploratory data gained to date, ensuring that any resource developed would meet the identified needs of parents.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.