Evidence map›Paper›PMID 29862851›Full record

ArticleThe American journal of hospice & palliative care2018

Mobile Health Technology Is Here-But Are Hospice Informal Caregivers Receptive?

Veerawat Phongtankuel, Ariel Shalev, Ronald D Adelman, Richard Dewald, Ritchell Dignam, Rosemary Baughn, Holly G Prigerson, Jeanne Teresi, Sara J Czaja, M Carrington Reid

Abstract read
In one paragraph

Article in The American journal of hospice & palliative care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
3.9field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.

  1. Pooled it
  2. Trial
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  13. Home Hospice Caregivers' Perceived Information Needs.The American journal of hospice & palliative care · 2019
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  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 1 country.

Veerawat Phongtankuel1 Weill Cornell Medicine, New York, NY, USA.ORCID http://orcid.org/0000-0002-7488-1264
Ariel Shalev1 Weill Cornell Medicine, New York, NY, USA.ORCID http://orcid.org/0000-0002-7749-1261
Ronald D Adelman1 Weill Cornell Medicine, New York, NY, USA.
Richard Dewald2 The Visiting Nurse Service of New York, New York, NY, USA.
Ritchell Dignam2 The Visiting Nurse Service of New York, New York, NY, USA.
Rosemary Baughn2 The Visiting Nurse Service of New York, New York, NY, USA.
Holly G Prigerson1 Weill Cornell Medicine, New York, NY, USA.
Jeanne Teresi3 Research Division, Hebrew Home at Riverdale, Riverdale, NY, USA.
Sara J Czaja1 Weill Cornell Medicine, New York, NY, USA.
M Carrington Reid1 Weill Cornell Medicine, New York, NY, USA.
Cornell University · USVNS Health · USNew York Psychoanalytic Society and Institute · US

Funding

Disparities in COVID Disease Severity and Outcomes in New York CityUL1TR002384 · NCATS · WEILL MEDICAL COLL OF CORNELL UNIV · PI JULIANNE L IMPERATO-MCGINLEY · 2017 to 2026
$86.2M
Pilot CoreP30AG022845 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI Manney Carrington Reid · 2003 to 2026
$15.2M
Psychosocial Approaches to Better Understanding & End-Stage Cancer Care (PROTECT)R35CA197730 · NCI · WEILL MEDICAL COLL OF CORNELL UNIV · PI Holly Gwen Prigerson · 2015 to 2026
$11.2M
Reid Aging and Pain Research Training ProgramK24AG053462 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI REID, MANNEY CARRINGTON · 2016 to 2025
$1.8M
Developing and pilot testing culturally based educational videos for Puerto Rican and African American home hospice caregiversK76AG059997 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI PHONGTANKUEL, VEERAWAT · 2019 to 2023
$1.6M
Identifying Correlates of Symptom Burden Experienced by Home Hospice Patients and its Association with Patient and Caregiver OutcomesR03AG053284 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI PHONGTANKUEL, VEERAWAT · 2016 to 2017
$254k
NCATS NIH HHS UL1 TR002384NCI NIH HHS R35 CA197730NIA NIH HHS K24 AG053462NIA NIH HHS K76 AG059997NIA NIH HHS P30 AG022845NIA NIH HHS R03 AG053284
6 · The paper itself

Abstract

background: Mobile health applications (mHealth apps) represent a rapidly emerging technology that is being used to improve health-care delivery. In home hospice, informal caregivers play an essential role in attending to the day-to-day needs of their terminally ill loved ones. Using mHealth apps by caregivers in this setting could potentially improve the support provided to both patients and caregivers at the end of life (EoL).

objectives: To explore informal caregivers' receptivity and concerns in using mHealth apps along with app features, caregivers perceived to be most useful in home hospice care.

design: Eighty semistructured phone interviews were conducted with informal caregivers who received care from a nonprofit hospice organization. Study data were analyzed using content analysis, coding for themes of receptivity and interest.

results: Sixty-two (78%) participants were receptive to using an mHealth app in home hospice care. Informal caregivers were interested in features that addressed: (1) communication to improve patient care (n = 44, 70%), (2) access to patient care information (n = 30, 48%), (3) education (n = 24, 39%), and (4) updates from health-care personnel and scheduling services (n = 10, 16%).

conclusions: A substantial majority of informal caregivers voiced receptivity to using mHealth apps and expressed interest in features that enhance communication and provide information to improve patient care. Although more research is needed to examine how to incorporate this technology into existing home hospice care, our study suggests that informal caregivers are likely to use this technology they feel will help enhance home-based EoL care delivery.

Indexed as

CaregiversMobile ApplicationsAdultAgedAge FactorsAppointments and SchedulesCommunicationFemaleHospice CareHumansInterviews as TopicMaleMiddle AgedPatient Access to RecordsPatient Education as TopicQualitative Researchcaregivingend of lifehospicemHealthtechnologytelemedicine

Identifiers

PMID29862851
PMCPMC6185794
OpenAlexW2806003224

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.