Evidence map›Paper›PMID 29854231›Full record

Observational studyAMIA ... Annual Symposium proceedings. AMIA Symposium2017

Current State of Electronic Consent Processes in Behavioral Health: Outcomes from an Observational Study.

Hiral Soni, Adela Grando, Anita Murcko, Mike Bayuk, Pramod Chandrashekar, Madhumita Mukundan, Meredith Abrams, Marcela P Aliste, Megan Hiestand, Julia Varkey and 8 more

Open access · greenAbstract readObservational Study
In one paragraph

Observational study in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 1 pooled it
1.7field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it, 14 citations in OpenAlex.

  1. Pooled it
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  6. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors at 2 institutions in 1 country.

Hiral SoniDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Adela GrandoDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Anita MurckoDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Mike BayukDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Pramod ChandrashekarDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Madhumita MukundanDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Meredith AbramsDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Marcela P AlisteDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Megan HiestandDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Julia VarkeyDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Wentao ZhouDepartment of Biomedical Informatics, Arizona State University, Scottsdale, Arizona.
Caroline HorrowBiomedical Ethics Research Program, Mayo Clinic, Rochester, Minnesota.
Michael SaksSandra Day O'Connor College of Law, Arizona State University, Tempe, Arizona.
Richard SharpBiomedical Ethics Research Program, Mayo Clinic, Rochester, Minnesota.
Mary Jo WhitfieldJewish Family and Children's Services, Phoenix, Arizona.
Mark CallesenJewish Family and Children's Services, Phoenix, Arizona.
Christy DyePartners in Recovery, Phoenix, Arizona.
Darwyn ChernPartners in Recovery, Phoenix, Arizona.
Arizona State University · USMayo Clinic · US

Funding

My Data Choices, evaluation of effective consent strategies for patients with behavioral health conditionsR01MH108992 · NIMH · ARIZONA STATE UNIVERSITY-TEMPE CAMPUS · PI GRANDO, MARIA ADELA · 2016 to 2020
$2.0M
NIMH NIH HHS R01 MH108992
6 · The paper itself

Abstract

An integral element of value-based care is care team access to both physical and behavioral health data. Data release processes in both environments are governed by federal and state statutes. The requirements for obtaining consent are complex and often confusing. Little is known about the consent processes and practices in the behavioral health setting, specifically how patients and surrogates engage in the process and their interactions with electronic consent tools. This study analyzes the consent processes from the patient perspective at two community behavioral health clinics. Outcomes include description of the processes using electronic consent, workflows and consenter-provider interactions. Conclusions include need to streamline and standardize consent technologies and improve consenter engagement. This study supports the development of an electronic consent tool, My Data Choices (MDC), funded by the National Institute of Mental Health, that offers individuals with behavioral health conditions more control over their medical records.

Indexed as

Informed ConsentPatient Access to RecordsCommunity Mental Health ServicesHealth Information InteroperabilityHealth LiteracyHumansPatient Care TeamUnited States

Identifiers

PMID29854231
PMCPMC5977724
OpenAlexW2785848184

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.