ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2017
Understanding Patient Questions about their Medical Records in an Online Health Forum: Opportunity for Patient Portal Design.
Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- State of the art and a mixed-method personalized approach to assess patient perceptions on medical record sharing and sensitivity.Journal of biomedical informatics · 2020Pooled it
- A Dataset for Addressing Patient's Information Needs related to Clinical Course of Hospitalization.Scientific data · 2026Article
- Identification and Classification Features of Patient Portal, A Systematic Review.Health science reports · 2025Review
- Stakeholders' engagement for improved health outcomes: a research brief to design a tool for better communication and participation.Frontiers in public health · 2025Article
- Evaluating Artificial Intelligence in Clinical Settings-Let Us Not Reinvent the Wheel.Journal of medical Internet research · 2024Article
- The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating.Applied clinical informatics · 2023Review
- Understanding Information Needs and Barriers to Accessing Health Information Across All Stages of Pregnancy: Systematic Review.JMIR pediatrics and parenting · 2022Review
- User-Centered System Design for Communicating Clinical Laboratory Test Results: Design and Evaluation Study.JMIR human factors · 2021Article
- Effect of AI Explanations on Human Perceptions of Patient-Facing AI-Powered Healthcare Systems.Journal of medical systems · 2021Article
- Utilization of Self-Diagnosis Health Chatbots in Real-World Settings: Case Study.Journal of medical Internet research · 2021Article
- Patient Challenges and Needs in Comprehending Laboratory Test Results: Mixed Methods Study.Journal of medical Internet research · 2020Article
- Use and impact of an online community for hospital patients.Journal of the American Medical Informatics Association : JAMIA · 2020Article
- Understanding Patient Information Needs About Their Clinical Laboratory Results: A Study of Social Q&A Site.Studies in health technology and informatics · 2019Article
- Exploring the Design of an Inpatient Peer Support Tool: Views of Adult Patients.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
There are many benefits of online patient access to their medical records through technologies such as patient portals. However, patients often have difficulties understanding the clinical data presented in portals. In response, increasingly, patients go online to make sense of this data. One commonly used online resource is health forums. In this pilot study, we focus on one type of clinical data, laboratory results, and one popular forum, MedHelp. We examined patient question posts that contain laboratory results to gain insights into the nature of these questions and of the answers. Our analyses revealed a typology of confusion (i.e., topics of their questions) and potential gaps in traditional healthcare supports (i.e., patients' requests and situational factors), as well as the supports patients may gain through the forum (i.e., what the community provides). These results offer preliminary evidence of opportunities to redesign patient portals, and will inform our future work.
Indexed as
Identifiers
29854216PMC5977702What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.