Evidence map›Paper›PMID 29846351›Full record

ArticleProfessional case management

Barriers to Care for Persons With Sickle Cell Disease: The Case Manager's Opportunity to Improve Patient Outcomes.

Jill Brennan-Cook, Emily Bonnabeau, Ravenne Aponte, Christina Augustin, Paula Tanabe

Abstract readCase Reports
PubMed Full text at PMC Publisher
In one paragraph

Article in Professional case management. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.

0numbers the graph read from it
0cells of the map it votes in
25citing papers in PubMed
2.3field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

25 citing papers in PubMed, 49 citations in OpenAlex.

  1. Trial
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  3. Humanistic and economic burden among caregivers of adults and children with sickle cell disease and recurrent vaso-occlusive crises.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
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  11. Creating demand for unmet needs: Agile Storytelling.Frontiers in health services · 2024
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  16. Surveillance for Sickle Cell Disease - Sickle Cell Data Collection Program, Two States, 2004-2018.Morbidity and mortality weekly report. Surveillance summaries (Washington, D.C. : 2002) · 2022
    Article
  17. An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Jill Brennan-CookJill Brennan-Cook, DNP, RN, CNE, is Assistant Clinical Professor at Duke University School of Nursing and teaches in the ABSN program. Her current research interests are sickle cell disease, educational strategies, health equity, nutrition, and wellness. Emily Bonnabeau, BA, is Clinical Research Coordinator at Duke University School of Nursing. She has a bachelor's degree in Sociology and Black Studies with a concentration in Criminology and minor in Political Science from State University of New York at New Paltz. Her research interests include health inequities. Ravenne Aponte, BA, is current Accelerated Baccalaureate Student Nurse and Health Equity Academy Scholar at Duke University School of Nursing. She has a bachelor's degree in African American studies and Health Disparities from the University of Florida. Her research interests include health disparities in minority populations and global health. Christina Augustin, BS, is current Accelerated Baccalaureate Student Nurse and Health Equity Academy Scholar at Duke University School of Nursing. She has a bachelor's degree in Health Education from the University of Florida where she developed an interest in sickle cell disease research and bone marrow transplantation. Paula Tanabe, PhD, RN, FAEN, FAAN, is Professor of Nursing at Duke University. Her program of research is focused on improving systems of care for individuals living with sickle cell disease.
Emily Bonnabeau
Ravenne Aponte
Christina Augustin
Paula Tanabe
Clinical Research Institute · US

Funding

Improving SCD Care using Web-based Guidelines, Nurse Care Managers and Peer Mentors in Primary Care and Emergency Departments in Central North CarolinaU01HL133964 · NHLBI · DUKE UNIVERSITY · PI SHAH, NIRMISH R, TANABE, PAULA · 2016 to 2021
$4.8M
Disseminating NIH Evidence Based Sickle Cell Recommendations in North CarolinaR18HS024501 · AHRQ · DUKE UNIVERSITY · PI CREGO, NANCY A. · 2016 to 2019
$1.5M
AHRQ HHS R18 HS024501NHLBI NIH HHS U01 HL133964
6 · The paper itself

Abstract

PURPOSE AND

objectivesThe purpose of this discussion is to review the barriers to care for patients with sickle cell disease (SCD). Chronic pain and the perception of addiction, implicit bias, frequent hospitalizations and emergency department visits, clinician and patient knowledge deficits, and SCD stigma all impede the ability to provide evidence-based care for patients with SCD. Case managers can coordinate and advocate for appropriate care that improves patient outcomes. PRIMARY PRACTICE

settingThis discussion is relevant to case managers working with patients with SCD in the clinic, hospital, and emergency department. FINDINGS/

conclusionsCase managers can serve an important advocacy role and intervene to improve the coordination of services and efficient use of resources. This will lead to improved quality of life and optimal health care utilization for persons with SCD. IMPLICATIONS FOR CASE MANAGEMENT PRACTICE: As a constant member of the health care team, the case manager may be the only health care team member who has a broad knowledge of the patient's experience of acute and chronic pain, usual state of health, social behavioral health needs, and how these factors may affect both inpatient and outpatient health care use and health outcomes. This article explores the barriers to care and suggests specific interventions within the role of the case manager that can improve care delivered and ultimately contribute to improved patient outcomes. Specifically, these interventions can improve communication among members of the health care team. Case manager interventions can guide coordination, prevent hospital readmissions, reduce health care utilization, and contribute to overall improved patient quality of life and health outcomes.

Indexed as

Case ManagersHealth Services AccessibilityOutcome Assessment, Health CareProfessional-Patient RelationsAdultAnemia, Sickle CellHumansMaleYoung Adult

Identifiers

PMID29846351
PMCPMC5981859
OpenAlexW2944824420

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.