ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2018
Ongoing ostomy self-care challenges of long-term rectal cancer survivors.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers.
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The trial behind it
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Who cites it
31 citing papers in PubMed, 82 citations in OpenAlex.
- Effect of a Stoma Care Training Belt on Stoma Care Skills, Adjustment, Anxiety and Satisfaction in Intestinal Stoma Patients: Randomized Controlled Study.Nursing open · 2026Trial
- Impact of problem management-guided health education with positive incentive nursing after rectal cancer surgery.World journal of gastrointestinal surgery · 2025Trial
- Cancer survivors' greatest challenges of living with an ostomy: findings from the Ostomy Self-Management Telehealth (OSMT) randomized trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Trial
- The effect of nurse-led interventions in self-efficacy and psychosocial adjustment of individuals with bowel ostomy: a systematic review.Journal of research in nursing : JRN · 2026Article
- Impact of a Digital Leakage Notification System on Healthcare Resource Utilisation and Costs for People with Stomas in the United Kingdom: Analysis of Interim Results from a Prospective Longitudinal Study.Journal of market access & health policy · 2026Article
- Article
- Distinct financial and social hardships among gastrointestinal cancer survivors: a national survey analysis.Journal of cancer survivorship : research and practice · 2026Article
- Impact of Ostomy on Quality of Life in Patients with Colorectal Cancer: A Systematic Review and Meta-Analysis.Healthcare (Basel, Switzerland) · 2026Review
- Impact of a Digital Leakage Notification System on Leakage, Quality of Life, Healthcare Resource Utilisation, and Work Productivity: Interim Results from a Longitudinal Real-World Study in the UK.Journal of clinical medicine · 2026Article
- Body image and its influencing factors in colorectal cancer patients with a stoma: a latent profile analysis.Frontiers in public health · 2026Article
- Where healthcare systems fall short in long-term ostomy care: implications for quality of life, healthcare utilization, and sustainable care pathways.Frontiers in gastroenterology (Lausanne, Switzerland) · 2026Review
- The impact of ostomy on colorectal cancer patients and caregivers: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Regional Colon and Rectal Surgeon Density Is Associated with Variation in Rectal Cancer Surgical Treatment: A Dartmouth Atlas Study.Journal of clinical medicine · 2025Article
- Evaluating the Effect of a Novel Digital Ostomy Device on Leakage Incidents, Quality of Life, Mental Well-Being, and Patient Self-Care: An Interventional, Multicentre Clinical Trial.Journal of clinical medicine · 2024Article
- Article
- Sociodemographic and clinical characteristics of people with ostomy and the adaptive domains of Roy's theory: A cross-sectional study.PloS one · 2024Article
- The barriers and facilitators to nursing care for patients with permanent colostomy in outpatient centers: A qualitative study.Journal of education and health promotion · 2024Article
- Limitations on participation and global quality of life among CRC survivors with permanent stomas: moderated mediation analysis of psychological distress and family functioning.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Factors associated with leakage in patients with an ostomy: A cross-sectional study.Nursing open · 2023Article
- The effect of self-efficacy levels of patients with intestinal stoma on stoma adaptation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
Corrections and comments
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Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
purposeSurgical treatment for rectal cancer (RC) can result in an intestinal ostomy that requires lifelong adaptation and investment of physical, cognitive, and financial resources. However, little is known about the extent of ongoing challenges related to ostomy self-care among long-term RC survivors. We analyzed the prevalence of self-reported ostomy self-care challenges and the physical and environmental factors that can support or undermine ostomy self-care.
methodsWe mailed surveys to long-term (≥ 5 years post-diagnosis) RC survivors, including 177 adults with ostomies who were members of integrated health systems in northern California, Oregon, and Washington State. Potential participants were identified through tumor registries. Data were also extracted from electronic health records.
resultsThe response rate was 65%. The majority of respondents were male (67%), and the mean age was 75 years. Sixty-three percent of respondents reported at least one ostomy self-care challenge. The most common challenges were leakage or skin problems around the ostomy and needing to change the pouching system too frequently. Twenty-two percent reported difficulty caring for their ostomy. Younger age and higher BMI were consistently related to ostomy self-care challenges.
conclusionsThe majority of RC survivors reported ostomy-related self-care challenges, and 31% experienced problems across multiple domains of ostomy self-care. In addition, most survivors reported significant physical challenges that could lead to ostomy-related disability. Although the participants surveyed had access to ostomy care nurses, the care gaps we found suggest that additional work is needed to understand barriers to ostomy care, reduce unmet needs, and improve well-being among this group.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.