Trial reportJournal of neuro-oncology2018
Outcomes of an electronic social network intervention with neuro-oncology patient family caregivers.
Trial report in Journal of neuro-oncology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Benefits of supportive strategies for carers of people with high-grade glioma: a systematic review : Strategies for addressing the needs of high-grade glioma carers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers.The Cochrane database of systematic reviews · 2022Pooled it
- Interventions to help support caregivers of people with a brain or spinal cord tumour.The Cochrane database of systematic reviews · 2019Pooled it
- Building on and tailoring to: Adapting a cancer caregiver psychoeducational intervention for rural settings.Cancer medicine · 2024Trial
- Effects of dependent care theory-based post-surgical home care intervention on self-care, symptoms, and caregiver burden in patients with primary brain tumor and their caregivers: a randomized controlled trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Trial
- Feasibility of a Multi-Component Strengths-Building Intervention for Caregivers of Persons With Heart Failure.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Trial
- Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma: RCT results.Journal of neuro-oncology · 2023Trial
- Trial
- Application-Based Interventions for Family Caregivers of Older Adults: Scoping Review.JMIR aging · 2026Article
- Reporting standards in randomized controlled trials involving neuro-oncology caregivers: A systematic review report from the RANO-Cares working group.Neuro-oncology practice · 2025Article
- Nursing Support for Caregiver Burden in Family Caregivers of Patients With Cancer: A Scoping Review.The American journal of hospice & palliative care · 2024Article
- Simulation-based caregiving skills training for family members of high-grade glioma patients.Neuro-oncology practice · 2024Article
- Training cancer caregiver navigators: experiences from implementing the eSNAP and caregiver navigator intervention.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Family caregiver constructs and outcome measures in neuro-oncology: A systematic review.Neuro-oncology practice · 2022Review
- The Social Networks and Social Support of Siblings of Children with Cancer.Children (Basel, Switzerland) · 2022Article
- Dyadic associations between perceived social support and cancer patient and caregiver health: An actor-partner interdependence modeling approach.Psycho-oncology · 2019Article
- Extending Integration: Interventions Supporting Communication and Collaboration Between Patients with Neurological Diseases, Their Informal Caregivers and Healthcare Staff - a Scoping Review.International journal of integrated careArticle
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
introductionInformal family caregivers (FCG) are an integral and crucial human component in the cancer care continuum. However, research and interventions to help alleviate documented anxiety and burden on this group is lacking. To address the absence of effective interventions, we developed the electronic Support Network Assessment Program (eSNAP) which aims to automate the capture and visualization of social support, an important target for overall FCG support. This study seeks to describe the preliminary efficacy and outcomes of the eSNAP intervention.
methodsForty FCGs were enrolled into a longitudinal, two-group randomized design to compare the eSNAP intervention in caregivers of patients with primary brain tumors against controls who did not receive the intervention. Participants were followed for six weeks with questionnaires to assess demographics, caregiver burden, anxiety, depression, and social support. Questionnaires given at baseline (T1) and then 3-weeks (T2), and 6-weeks (T3) post baseline questionnaire.
resultsFCGs reported high caregiver burden and distress at baseline, with burden remaining stable over the course of the study. The intervention group was significantly less depressed, but anxiety remained stable across groups.
conclusionsWith the lessons learned and feedback obtained from FCGs, this study is the first step to developing an effective social support intervention to support FCGs and healthcare providers in improving cancer care.
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