Evidence map›Paper›PMID 29802576›Full record

ArticlePharmacoEconomics - open2018

Developing Accessible, Pictorial Versions of Health-Related Quality-of-Life Instruments Suitable for Economic Evaluation: A Report of Preliminary Studies Conducted in Canada and the United Kingdom.

David G T Whitehurst, Nicholas R Latimer, Aura Kagan, Rebecca Palmer, Nina Simmons-Mackie, J Charles Victor, Jeffrey S Hoch

Abstract read
In one paragraph

Article in PharmacoEconomics - open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Trial
  2. Sensitivity to change of generic preference-based instruments (EQ-5D-3L, EQ-5D-5L, and HUI3) in the context of treatment for people with prescription-type opioid use disorder in Canada.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Trial
  3. Trial
  4. Trial
  5. Trial
  6. Article
  7. Article
  8. Article
  9. A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Article
  10. Article
  11. Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

David G T WhitehurstFaculty of Health Sciences, Blusson Hall, Simon Fraser University, 8888 University Drive, Burnaby, BC, V5A 1S6, Canada. david_whitehurst@sfu.ca.ORCID http://orcid.org/0000-0002-7890-6756
Nicholas R LatimerHealth Economics and Decision Science, School of Health and Related Research, The University of Sheffield, Regent Court, 30 Regent Street, Sheffield, S1 4DA, England, UK.ORCID http://orcid.org/0000-0001-5304-5585
Aura KaganAphasia Institute, The Pat Arato Aphasia Centre, 73 Scarsdale Road, Toronto, ON, M3B 2R2, Canada.
Rebecca PalmerHealth Services Research, School of Health and Related Research, The University of Sheffield, Innovation Centre, 217 Portobello, Sheffield, S1 4DP, England, UK.ORCID http://orcid.org/0000-0002-2335-7104
Nina Simmons-MackieDepartment of Health and Human Sciences, Southeastern Louisiana University, 310 West Dakota Street, Hammond, LA, USA.
J Charles VictorInstitute for Health Policy Management and Evaluation, University of Toronto, Health Sciences Building, 155 College St, Suite 425, Toronto, ON, M5T 3M6, Canada.ORCID http://orcid.org/0000-0003-1720-9356
Jeffrey S HochDepartment of Public Health Sciences, 1 Shields Avenue, Med Sci 1-C, University of California, Davis, Davis, California, 95616-8638, USA.ORCID http://orcid.org/0000-0002-4880-4281

Funding

Health Technology Assessment Programme 12/21/01ABOntario Ministry of Health and Long-Term Care OSN1101-000120Research for Patient Benefit Programme PB-PG-1207-14097SFU Community Trust Endowment Fund LivWELL Catalyst Grant
6 · The paper itself

Abstract

A key component of the current framework for economic evaluation is the measurement and valuation of health outcomes using generic preference-based health-related quality-of-life (HRQoL) instruments. In 2015, a research synthesis reported the absence of conceptual and empirical research regarding the appropriateness of current preference-based instruments for people with aphasia-a disorder affecting the use and understanding of language-and suggested the development and validation of an accessible, pictorial variant could be an appropriate direction for further research. This paper describes the respective rationale and development process for each of three preliminary studies that have been undertaken to develop pictorial variants of two widely used preference-based HRQoL instruments (EQ-5D-3L and EQ-5D-5L). The paper also proposes next steps for this program of research, drawing on the lessons learned from the preliminary work and the demand for a pictorial preference-based instrument in the research community. Guidance for the use of the preliminary, pictorial instruments is also provided.

Identifiers

PMID29802576
PMCPMC6103929

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.