Observational studyJournal of the American Heart Association2018
Illness Identity: A Novel Predictor for Healthcare Use in Adults With Congenital Heart Disease.
Observational study in Journal of the American Heart Association, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Measures of identity in adolescents/young adults with long-term physical health conditions: a systematic review.Journal of pediatric psychology · 2026Pooled it
- A Systematic Review of Relationships Between Illness Identity and Health-Related Outcomes in Individuals with Chronic Illnesses.Journal of clinical psychology in medical settings · 2024Pooled it
- Illness Identity in Symptomatic Adults with Sickle Cell Disease: Preliminary Findings and Considerations.Journal of clinical psychology in medical settings · 2026Article
- Illness Identity and Its Influence on Self-Management in Older Adults With Multimorbidity: A Hybrid Thematic Analysis.Qualitative health research · 2026Article
- Illness Integration in Caregivers' Identity: Associations with Care-Burden, Well-Being, and Attachment Orientation.Journal of clinical psychology in medical settings · 2026Article
- Remote Monitoring in Adults With Congenital Heart Disease: A Patient Experience Study.Journal of patient experience · 2026Article
- How Emotion Regulation and Illness Identity Shape Mental Health in Adults with Congenital Heart Disease.Medical sciences (Basel, Switzerland) · 2025Article
- Diagnosis Identity Perception in Adolescents with ADHD and Its Relationship to Executive Functions, Self-Management, and Quality of Life.Children (Basel, Switzerland) · 2025Article
- Development and validation of the Physical Disability Identity Scale: A multistudy quantitative investigation with participant feedback.Rehabilitation psychology · 2025Article
- Mental Health Treatment in Adults with Congenital Heart Disease in Germany: An Online, Cross-Sectional Study of Status, Needs, and Treatment Reasons.Journal of cardiovascular development and disease · 2025Article
- Key Psychosocial Health Outcomes and Association With Resilience Among Patients With Adult Congenital Heart Disease.JACC. Advances · 2024Article
- Definitions of resilience and resilience resource use as described by adults with congenital heart disease.International journal of cardiology. Congenital heart disease · 2023Article
- The relationship between illness identity and the self-management of Inflammatory Bowel Disease.British journal of health psychology · 2022Article
- A cross-cultural adaptation and validation of a scale to assess illness identity in adults living with a chronic illness in South Africa: a case of HIV.AIDS research and therapy · 2022Article
- The development and validation of scales to measure the presence of a teachable moment following a cardiovascular disease event.Preventive medicine reports · 2022Article
- Article
- Younger Women Living with Chronic Disease: Comparative Challenges, Resiliencies, and Needs in Heart Disease and Breast Cancer.Journal of women's health (2002) · 2021Article
- Communicative and Discursive Perspectives on the Medication Experience.Pharmacy (Basel, Switzerland) · 2021Article
- Current research status on the psychological situation of adults with congenital heart disease.Cardiovascular diagnosis and therapy · 2018Review
- Confirmatory factor analysis of an identity questionnaire Among autistic adolescents and young adults.Autism & developmental language impairmentsArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundTo optimize healthcare use of adults with congenital heart disease, all important predictors of healthcare utilization should be identified. Clinical and psychological characteristics (eg, age and depression) have been found to be associated with healthcare use. However, the concept of illness identity, which assesses the degree to which congenital heart disease is integrated into one's identity, has not yet been investigated in association with healthcare use. Hence, the purpose of the study is to examine the predictive value of illness identity for healthcare use. METHODS AND
resultsIn this ambispective analytical observational cohort study, 216 adults with congenital heart disease were included. The self-reported Illness Identity Questionnaire was used to assess illness identity states: engulfment, rejection, acceptance, and enrichment. After 1 year, self-reported healthcare use for congenital heart disease or other reasons over the past 6 months was assessed including hospitalizations; visits to general practitioner; visits to medical specialists; and emergency room visits. Binary logistic and negative binomial regression analyses were conducted, adjusting for age, sex, disease complexity, and depressive and anxious symptoms. The more profoundly the heart defect dominated one's identity (ie, engulfment), the more likely this person was to be hospitalized (odds ratio=3.76; 95% confidence interval=1.43-9.86), to visit a medical specialist (odds ratio=2.32; 95% confidence interval=1.35-4.00) or a general practitioner (odds ratio=1.78; 95% confidence interval=1.01-3.17), because of their heart defect.
conclusionsIllness identity, more specifically engulfment, has a unique predictive value for the occurrence of healthcare encounters. This association deserves further investigation, in which the directionality of effects and the contribution of illness identity in terms of preventing inappropriate healthcare use should be determined.
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