Evidence map›Paper›PMID 29788946›Full record

ReviewBMC pulmonary medicine2018

Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomes.

Katy L M Hester, Julia Newton, Tim Rapley, Anthony De Soyza

Registry-linked trialOpen access · goldAbstract readReview
In one paragraph

Review in BMC pulmonary medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06164470 (Impact of Support Groups for Patients With Non-Cystic Fibrosis Bronchiectasis on Quality of Life and Exacerbations), which is not on this map. Cited by 16 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 1 pooled it
2.7field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06164470 nacompletednot on this mapstarted 2024, after this paper: background citation

Impact of Support Groups for Patients With Non-Cystic Fibrosis Bronchiectasis on Quality of Life and Exacerbations

TypeinterventionalSponsorUniversity of California, San FranciscoRan2024 to 2025Enrolled42ConditionsNon-cystic Fibrosis BronchiectasisArmsSupport Group
3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 1 synthesis or guideline pooled it, 44 citations in OpenAlex.

  1. Guideline
  2. Trial
  3. Trial
  4. Trial
  5. Web-Based Physiotherapy Resources for Bronchiectasis: Evaluation of Content, Quality, and Implementation Evidence.Physiotherapy research international : the journal for researchers and clinicians in physical therapy · 2026
    Article
  6. Impact of health information prescription in thyroid cancer.Journal of the Medical Library Association : JMLA · 2026
    Article
  7. Article
  8. Article
  9. Patient-managed interventions for adults with bronchiectasis: evidence, challenges and prospects.European respiratory review : an official journal of the European Respiratory Society · 2024
    Review
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Review
  16. Bronchiectasis: an emerging global epidemic.BMC pulmonary medicine · 2018
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Katy L M HesterInstitute of Cellular Medicine, Newcastle University, Newcastle upon Tyne, NE2 4HH, UK. Katy.hester@ncl.ac.uk.ORCID http://orcid.org/0000-0002-9246-2450
Julia NewtonFaculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, NE2 4HH, UK.
Tim RapleyDepartment of Social Work, Education and Community Wellbeing, Northumbria University, Newcastle upon Tyne, NE7 7XA, UK.
Anthony De SoyzaInstitute of Cellular Medicine, Newcastle University, Newcastle upon Tyne, NE2 4HH, UK.
Freeman Hospital · GBNewcastle University · GBNorthumbria University · GB

Funding

Department of Health DRF-2012-05-149Medical Research Council MR/L011263/1
6 · The paper itself

Abstract

backgroundBronchiectasis is an incurable lung disease characterised by irreversible airway dilatation. It causes symptoms including chronic productive cough, dyspnoea, and recurrent respiratory infections often requiring hospital admission. Fatigue and reductions in quality of life are also reported in bronchiectasis. Patients often require multi-modal treatments that can be burdensome, leading to issues with adherence. In this article we review the provision of, and requirement for, education and information in bronchiectasis. DISCUSSION: To date, little research has been undertaken to improve self-management in bronchiectasis in comparison to other chronic conditions, such as COPD, for which there has been a wealth of recent developments. Qualitative work has begun to establish that information deficit is one of the potential barriers to self-management, and that patients feel having credible information is fundamental when learning to live with and manage bronchiectasis. Emerging research offers some insights into ways of improving treatment adherence and approaches to self-management education; highlighting ways of addressing the specific unmet information needs of patients and their families who are living with bronchiectasis.

conclusionsWe propose non-pharmacological recommendations to optimise patient self-management and symptom recognition; with the aim of facilitating measurable improvements in health outcomes for patients with bronchiectasis.

Indexed as

Patient Education as TopicAccess to InformationBronchiectasisChronic DiseaseHealth EducationHumansSelf-ManagementAdherenceBronchiectasisEducationInformationQualitativeSelf-management

Identifiers

PMID29788946
PMCPMC5964899
OpenAlexW2807563374

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.