ArticleJournal of pediatric psychology2019
Decision-Making Involvement and Prediction of Adherence in Youth With Type 1 Diabetes: A Cohort Sequential Study.
Article in Journal of pediatric psychology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
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Who cites it
24 citing papers in PubMed.
- Shared decision-making for preventive sports cardiology in youth with heart disease: a pilot study.Pediatric research · 2026Article
- 14. Children and Adolescents: Standards of Care in Diabetes-2026.Diabetes care · 2026Review
- Assessing Adolescent Involvement in Type 1 Diabetes Treatment: A Scoping Review of Person-Reported Outcome Instruments.Acta paediatrica (Oslo, Norway : 1992) · 2025Article
- Adolescent, Parent and Clinician Perspectives on Time Alone in Chronic Illness Visits at a Single Children's Hospital.Child: care, health and development · 2025Article
- Decision-making for children and adolescents: a scoping review of interventions increasing participation in decision-making.Pediatric research · 2025Article
- Parents' perspectives of factors affecting parent-adolescent communication about type 1 diabetes and negotiation of self-management responsibilities.Journal of child health care : for professionals working with children in the hospital and community · 2024Article
- Activating Adolescent and Young Adult Involvement with Cancer Care Responsibilities: A Dyadic Qualitative Study with Caregivers.Journal of adolescent and young adult oncology · 2024Article
- Giving adolescents with cystic fibrosis a voice: Predicting cystic fibrosis nutritional adherence from their decision-making involvement.Journal of pediatric psychology · 2024Article
- Adolescent Decision-Making Involvement in the Receipt of Genomic Testing Results.The Journal of pediatrics · 2023Article
- Demystifying a family-based epilepsy adherence problem-solving intervention: Exploring adherence barriers and solutions.Clinical practice in pediatric psychology · 2023Article
- Perceptions of Youth and Parent Decision-Making Roles Regarding Recombinant Human Growth Hormone Treatment.Endocrines · 2022Article
- Parenting and the Development of Impulse Control in Youth with Type 1 Diabetes: The Mediating Role of Negative Affect.Applied developmental science · 2022Article
- Longitudinal Trajectories of Clean Intermittent Catheterization Responsibility in Youths with Spina Bifida.The Journal of urology · 2022Article
- The Relationship Between Executive Functioning, Type 1 Diabetes Self-Management Behaviors, and Glycemic Control in Adolescents and Young Adults.Current diabetes reports · 2021Review
- Predictors of Distinct Trajectories of Medical Responsibility in Youth with Spina Bifida.Journal of pediatric psychology · 2020Article
- Youth Involvement in the Decision to Start CGM Predicts Subsequent CGM Use.Diabetes care · 2020Article
- Barriers and Facilitators to Involvement in Children's Diabetes Management Among Minority Parents.Journal of pediatric psychology · 2020Article
- Does Self-Efficacy Mediate the Link Between Impulse Control and Diabetes Adherence?Journal of pediatric psychology · 2020Article
- Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study.Palliative medicine · 2020Article
- Concurrent and Longitudinal Associations among Parenting Style, Responsibility, and Adherence in Youth with Cystic Fibrosis.Children's health care : journal of the Association for the Care of Children's Health · 2020Article
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
Objective: To assess developmental trajectories of decision-making involvement (DMI), defined as the ways in which parents and children engage each other in decision-making about illness management, in youth with type 1 diabetes (T1D) and examine the effects of DMI on levels of and changes in adherence with age. Methods: Participants included 117 youth with T1D, enrolled at ages 8-16 years and assessed five times over 2 years. The cohort sequential design allowed for the approximation of the longitudinal curve from age 8 to 19 from overlapping cohort segments. Children and parents completed the Decision-Making Involvement Scale, which yields subscales for different aspects of DMI, and a self-report adherence questionnaire. Mixed-effects growth curve modeling was used for analysis, with longitudinal measures nested within participant and participants nested within cohort. Results: Most aspects of DMI (Parent Express, Parent Seek, Child Express, and Joint) increased with child age; scores on some child report subscales (Parent Express, Child Seek, and Joint) decreased after age 12-14 years. After accounting for age, Child Seek, Child Express, and Joint were associated with overall higher levels of adherence in both child (estimates = 0.08-0.13, p < .001) and parent (estimates = 0.07- 0.13, p < .01) report models, but they did not predict changes in adherence with age. Conclusion: These data suggest that helping children to be more proactive in T1D discussions, by encouraging them to express their opinions, share information, and solicit guidance from parents, is a potential target for interventions to enhance effective self-management.
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Registered trials
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