Evidence map›Paper›PMID 29783091›Full record

ArticleContemporary clinical trials2018

MIND at Home-Streamlined: Study protocol for a randomized trial of home-based care coordination for persons with dementia and their caregivers.

Quincy M Samus, Betty S Black, Melissa Reuland, Jeannie-Marie S Leoutsakos, Laura Pizzi, Kevin D Frick, David L Roth, Laura N Gitlin, Constantine G Lyketsos, Deirdre Johnston

Registry-linked trialAbstract readClinical Trial Protocol
In one paragraph

Article in Contemporary clinical trials, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05406921 (Implementation of MIND at Home Program in Primary Care for People Living With Dementia), which is not on this map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
1.3field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05406921 nacompletednot on this mapstarted 2022, after this paper: background citation

Implementation of MIND at Home Program in Primary Care for People Living With Dementia: A Pilot Study

TypeinterventionalSponsorAmerican Medical Group AssociationRan2022 to 2024Enrolled410ConditionsDementiaArmsMIND at Home
3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 32 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 5 institutions in 1 country.

Quincy M SamusSchool of Medicine, Johns Hopkins University, USA. Electronic address: qmiles@jhmi.edu.
Betty S BlackSchool of Medicine, Johns Hopkins University, USA.
Melissa ReulandSchool of Medicine, Johns Hopkins University, USA.
Jeannie-Marie S LeoutsakosSchool of Medicine, Johns Hopkins University, USA.
Laura PizziRutgers University, USA.
Kevin D FrickCarey Business School, Johns Hopkins University, USA.
David L RothSchool of Medicine, Johns Hopkins University, USA.
Laura N GitlinSchool of Nursing, Drexel University, USA.
Constantine G LyketsosSchool of Medicine, Johns Hopkins University, USA.
Deirdre JohnstonSchool of Medicine, Johns Hopkins University, USA.
Johns Hopkins Medicine · USJohns Hopkins University · USDrexel University · USRutgers, The State University of New Jersey · USWilliam Carey University · US

Funding

'T V ASSESSMENT - MEMORY DISORDERED PATIENTS'P50AG005146 · NIA · JOHNS HOPKINS UNIVERSITY · PI ALBERT, MARILYN S. · 1985 to 2019
$37.6M
Using Mixed Methods to examine disparitites in dementia-related needs and intervention responses to MIND at Home care coordination program among African American persons with dementia and their caregR01AG046274 · NIA · JOHNS HOPKINS UNIVERSITY · PI SAMUS, QUINCY MILES · 2014 to 2018
$3.6M
NIA NIH HHS P50 AG005146NIA NIH HHS R01 AG046274
6 · The paper itself

Abstract

backgroundDementia is associated with high health care costs, premature long-term care (LTC) placement, medical complications, reduced quality of life, and caregiver burden. Most health care providers and systems are not yet organized or equipped to provide comprehensive long-term care management for dementia, although a range of effective symptoms and supportive care approaches exist. The Maximizing Independence at Home-Streamlined (MIND-S) is a promising model of home-based dementia care coordination designed to efficiently improve person-centered outcomes, while reducing care costs. This report describes the rationale and design of an NIA-funded randomized controlled trial to test the impact of MIND-S on time to LTC placement, person with dementia outcomes (unmet needs, behavior, quality of life), family caregiver outcomes (unmet needs, burden), and cost offset at 18 (primary end point) and 24 months, compared to an augmented usual care group.

methodsThis is a 24-month, parallel group, randomized trial evaluating MIND-S in a cohort of 304 community-living persons with dementia and their family caregivers in Maryland. MIND-S dyads receive 18 months of care coordination by an interdisciplinary team comprised of trained non-clinical community workers (e.g. Memory Care Coordinators), a registered nurse, and a geriatric psychiatrist. Intervention components include in-home dementia-related needs assessments; individualized care planning; implementation of standardized evidence-based care strategy protocols; and ongoing monitoring and reassessment. Outcomes are assessed by blinded evaluators at baseline, 4.5, 9, 13.5, 18, and 24 months. DISCUSSION: Trial results will provide rigorous data to inform innovations in effective system-level approaches to dementia care.

Indexed as

CaregiversCost of IllnessDementiaPatient Care ManagementQuality of LifeActivities of Daily LivingCost-Benefit AnalysisHome Care ServicesHumansIntersectoral CollaborationModels, OrganizationalNeeds AssessmentPatient Outcome AssessmentRandomized Controlled Trials as Topic

Identifiers

PMID29783091
PMCPMC6415306
OpenAlexW2804919541

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.