ArticlePloS one2018
Patient-reported healthcare expectations in inflammatory bowel diseases.
Article in PloS one, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient Perspectives and Expectations in Inflammatory Bowel Disease: A Systematic Review.Digestive diseases and sciences · 2022Pooled it
- Expectations of cardiovascular patients: Which factors stand out in healthcare service delivery?BMC health services research · 2026Article
- Residual Disease Burden Among European Patients With Inflammatory Bowel Disease: A Real-World Survey.Inflammatory bowel diseases · 2025Observational
- An Exploratory Study of Health-related Quality of Life and Care Experiences in Older Adults with Inflammatory Bowel Disease.Journal of the Canadian Association of Gastroenterology · 2023Article
- Patient-Centered Access to IBD Care: A Qualitative Study.Crohn's & colitis 360 · 2023Article
- Evaluation of Subcortical Structure Volumes in Patients with Non-Specific Digestive Diseases.Diagnostics (Basel, Switzerland) · 2022Article
- Understanding the surgical experience for Black and White patients with inflammatory bowel disease (IBD): The importance of health literacy.American journal of surgery · 2022Article
- Healthcare Needs and Perceptions of People Living With Inflammatory Bowel Disease in Australia: A Mixed-Methods Study.Crohn's & colitis 360 · 2022Article
- How do people think about the implementation of speech and video recognition technology in emergency medical practice?PloS one · 2022Article
- Patient Perspectives of IBD Care and Services: An Integral Part of a Pan-Canadian Quality Improvement Initiative.Journal of the Canadian Association of Gastroenterology · 2021Article
- Subjective Needs and Thoughts for the Treatment of Patients with Inflammatory Bowel Disease: Applying Q Methodology.The Korean journal of gastroenterology = Taehan Sohwagi Hakhoe chi · 2021Article
- What do consumers with chronic conditions expect from their interactions with general practitioners? A qualitative study of Australian consumer and provider perspectives.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Subjective expectations regarding ageing: a cross-sectional online population survey in Hungary.The European journal of health economics : HEPAC : health economics in prevention and care · 2019Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient-reported experience is an important component of a holistic approach to quality of care. Patients' expectations of treatments and global disease management may indicate their illness representations and their satisfaction and hopes regarding quality of care.
objectiveTo study expectations of patients with inflammatory bowel disease.
methodsTwo focus groups were conducted with 14 patients to explore their expectations about treatments and disease management. From qualitative content analyses of focus group discussions, we built a 22-item expectations questionnaire that was sent to 1756 patients of the Swiss IBD cohort. Answers were collected on a visual analog scale from 0 to 100, and medians (interquartile range [IQR]) calculated. Factor analysis identified main expectation dimensions, and multivariate analyses were performed to describe associations with patient characteristics.
resultsOf 1094 patients (62%) included in the study, 54% were female, 54% had Crohn's disease, 35% had tertiary education, and 72% were employed. Expectation dimensions comprised realistic, predictive, and ideal expectations and were linked to information, communication, daily care, and disease recognition. Half (11 of 22) of the expectations were ranked as very high (median score > 70), the 2 most important being good coordination between general practitioners and specialists (median score: 89, IQR: 71-96) and information on treatment adverse events (89, IQR: 71-96). Women had overall higher levels of expectations than did men. Expectations were not associated with psychosocial measures, except those related to disease recognition, and most of them were highly associated with increased concerns on disease constraints and uncertainty.
conclusionsPatients have high expectations for information and communication among caregivers, the levels varying by gender and region. Patients also appear to request more active participation in their disease management.
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