Evidence map›Paper›PMID 29751660›Full record

ArticleHealthcare (Basel, Switzerland)2018

Striking a Balance: A Qualitative Study of Next of Kin Participation in the Care of Older Persons in Nursing Homes in Sweden.

Birgitta Wallerstedt, Lina Behm, Åsa Alftberg, Anna Sandgren, Eva Benzein, Per Nilsen, Gerd Ahlström

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Healthcare (Basel, Switzerland), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed.

  1. Trial
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  7. Review
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  13. Next of kin's quality of life before and after implementation of a knowledge-based palliative care intervention in nursing homes.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019
    Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Birgitta WallerstedtCenter for Collaborative Palliative Care, Department of Health and Caring Sciences, Faculty of Health and Life Sciences, Linnaeus University, SE-351 95 Växjö, Sweden. birgitta.wallerstedt@lnu.se.
Lina BehmDepartment of Health Sciences, Faculty of Medicine, Lund University, SE-221 00 Lund, Sweden. lina.behm@med.lu.se.
Åsa AlftbergDepartment of Social Work, Faculty of Health and Society, Malmö University, SE-205 06 Malmö, Sweden. asa.alftberg@mah.se.
Anna SandgrenCenter for Collaborative Palliative Care, Department of Health and Caring Sciences, Faculty of Health and Life Sciences, Linnaeus University, SE-351 95 Växjö, Sweden. anna.sandgren@lnu.se.ORCID 0000-0002-3155-575X
Eva BenzeinCenter for Collaborative Palliative Care, Department of Health and Caring Sciences, Faculty of Health and Life Sciences, Linnaeus University, SE-351 95 Växjö, Sweden. eva.benzein@lnu.se.
Per NilsenDepartment of Medical and Health Sciences, Linköping University, SE-581 83 Linköping, Sweden. per.nilsen@liu.se.
Gerd AhlströmDepartment of Health Sciences, Faculty of Medicine, Lund University, SE-221 00 Lund, Sweden. gerd.ahlstrom@med.lu.se.ORCID 0000-0001-6230-7583

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Most of the care in nursing homes is palliative in nature, as it is the oldest and the frailest people who live in nursing homes. The aim of this study was to explore next of kin's experiences of participating in the care of older persons at nursing homes. A qualitative design was used, based on semi-structured interviews with 40 next of kin, and analyzed using qualitative content analysis. An overarching theme emerged, a balancing act consisting of three categories: (1) visiting the nursing home; (2) building and maintaining relationships; and (3) gathering and conveying information. The next of kin have to balance their own responsibility for the older person's wellbeing by taking part in their care and their need to leave the responsibility to the staff due to critical health conditions. The next of kin wanted to participate in care meetings and conversations, not only in practical issues. The findings indicate the need to improve the next of kin's participation in the care as an equal partner. Increased knowledge about palliative care and decision-making of limiting life-prolonging treatment may lead to a higher quality of care.

Indexed as

end-of-life carefamily memberinvolvementlife-limiting diseasenext of kinpalliative careparticipationrelativessheltered housingsignificant others

Identifiers

PMID29751660
PMCPMC6023303

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.