ArticleIndian journal of palliative care
Burden Experience of Caregivers of Acute Lymphoblastic Leukemia: Impact of Coping and Spirituality.
Article in Indian journal of palliative care. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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14 citing papers in PubMed, 33 citations in OpenAlex.
- Empowering Mothers: The Effects of Audio-Guided Meditation on Resilience and Spiritual Well-Being of Mothers of Children Diagnosed with Cancer in Türkiye-A Randomized Controlled Trial.Journal of religion and health · 2026Trial
- Investigation of Hope and Spiritual Well-Being Levels among Relatives of Intensive Care Patients in Turkey.Journal of religion and health · 2025Article
- Effectiveness of Family Coping Interventions in Improving Problem-Solving Skills in the Care of Children and Adolescent Cancer Survivors during and after Treatment: A Scoping Review.Nursing reports (Pavia, Italy) · 2024Article
- Exploring the lived experience of mothers of children with leukemia: a qualitative study from Iran.BMC women's health · 2024Article
- Caregiver burden in families of children with juvenile idiopathic arthritis in India.Clinical rheumatology · 2024Article
- Exploring the relationship between loneliness, spirituality, and health-related quality of life in Hispanic cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Relationship of Gratitude and Coping Styles with Depression in Caregivers of Children with Special Needs.Journal of religion and health · 2022Article
- Hope in Iranian mothers of children with cancer: a descriptive correlational study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- The Role of Parent/Caregiver with Children Affected by Rare Diseases: Navigating between Love and Fear.International journal of environmental research and public health · 2021Article
- Coping with Wolf-Hirschhorn syndrome: quality of life and psychosocial features of family carers.Orphanet journal of rare diseases · 2020Article
- Issues Related to Children-Faced by Armed Forces Families When Caring for Patients in Palliative Care - A Qualitative Study.Indian journal of palliative careArticle
- Parental Perspective in Paediatric Palliative Care: A Systematic Review of Literature Using the PRISMA Method.Indian journal of palliative careReview
- Stigma Experienced by the Caregivers of Patients with Chronic Plaque Psoriasis.Indian dermatology online journalArticle
- Anticipatory Grief among Chinese Family Caregivers of Patients with Advanced Cancer: A Cross-Sectional Study.Asia-Pacific journal of oncology nursingArticle
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWhen a child is diagnosed with cancer the parents as caregivers experience severe anxiety, trauma, ambiguity, and grief. Caregivers of cancer patients thus deal with the management of their own psychological distress along with the child's illness.
aimCoping plays a crucial role in improving the caregivers' physical and emotional well-being. Spirituality is an important means of consolation, strength, and emotional support during this phase. The present study aims to investigate the impact of coping and spirituality on caregiver burden.
methodsA total of 100 caregivers of children between the age group of 3-11 years, diagnosed with acute lymphoblastic leukemia were the participants of the study. The participants were recruited from cancer hospitals in Hyderabad. The study adopted a between-group design to find out if mothers and fathers differed in their coping strategies, spirituality, and caregiver burden. The study also adopted a correlation design to find the relationship between coping, spirituality, and caregiver burden. Descriptive statistics and multiple linear regression analysis were conducted to identify if coping and spirituality predict caregiver burden.
resultsThe results showed no significant difference in the burden experienced by both mothers and fathers; however, mothers and fathers used different coping strategies and differed on the dimensions of spirituality. The results of multiple linear regression indicated that dimensions of coping and spirituality were significant predictors of caregiver burden.
conclusionCancer in the child impacts the parent's burden but providing sufficient support and implementing effective coping strategies, will help in mitigating the intensity of caregiver burden. It is essential that the hospital authorities and policymakers understand that a professional health psychologist could be a liaison between the doctor, patient, and the caregiver in bringing down the levels of burden and psychological distress in caregivers as well as patients.
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