ArticleHeart & lung : the journal of critical care
Home discharge following critical illness: A qualitative analysis of family caregiver experience.
Article in Heart & lung : the journal of critical care. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
30 citing papers in PubMed, 3 syntheses or guidelines pooled it, 72 citations in OpenAlex.
- Effects of eHealth interventions on psychological outcomes of post intensive care syndrome-family: a systematic review and meta-analysis.Frontiers in medicine · 2026Pooled it
- Post-Intensive Care Syndrome in Family: A Concept Analysis.Scandinavian journal of caring sciences · 2025Pooled it
- Non-pharmacological interventions to support the cognitive rehabilitation of patients admitted to the intensive care unit: An umbrella review.Nursing in critical care · 2025Pooled it
- Post-Intensive Care Syndrome and Caregiver Burden: A Post Hoc Analysis of a Randomized Clinical Trial.JAMA network open · 2025Trial
- Quality of Life in Intensive Care Unit Survivors-Family Member Dyads: A Conceptual Framework and Longitudinal Study Protocol.Nursing in critical care · 2026Article
- Critical illness and recovery-learning from the shared experience of survivors and their families: A qualitative study.Journal of the Intensive Care Society · 2026Article
- The relationship between uncertainty in illness and caregiving capacity in primary caregivers of patients with first-time ischemic stroke: the roles of psychological adaptation and perceived social support.Frontiers in psychology · 2026Article
- Transitional care gaps and caregiver burden after ICU discharge: a cross-sectional study of patient-caregiver dyads.Frontiers in public health · 2026Article
- The role of family caregivers in critical illness survivor recovery at home: A qualitative study.Journal of health services research & policy · 2026Article
- Evaluating a stress management intervention effects on post-ICU syndrome in families: study protocol for a single-center, prospective, parallel-design, randomized controlled trial.Frontiers in psychology · 2026Article
- Supporting Post-ICU Recovery: A Narrative Review for General Practitioners.Diseases (Basel, Switzerland) · 2025Review
- Prevalence and Predictors of Home Discharge from the PICU.Critical care explorations · 2025Article
- Family members' experiences with intensive care unit diaries.BMC anesthesiology · 2025Article
- Article
- Distinct Trajectories of Fatigue Among Families with Post-Intensive Care Syndrome.International journal of general medicine · 2025Article
- The interactivity and independence of Recovery challenges and coping strategies for ICU survivors and their caregivers: a systematic review and Meta-synthesis.BMC nursing · 2024Article
- The Experiences of Family Members of Patients Discharged from Intensive Care Unit: A Systematic Review of Qualitative Studies.Nursing reports (Pavia, Italy) · 2024Review
- Integrating Perspectives on Family Caregiving After Critical Illness: A Qualitative Content Analysis.American journal of critical care : an official publication, American Association of Critical-Care Nurses · 2024Article
- Novel Definitions of Wellness and Distress among Family Caregivers of Patients with Acute Cardiorespiratory Failure: A Qualitative Study.Annals of the American Thoracic Society · 2024Article
- Revamping Communication Strategies: Emphasizing Emotional Connect in Times of Crisis.Indian journal of critical care medicine : peer-reviewed, official publication of Indian Society of Critical Care Medicine · 2023Article
Corrections and comments
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Authors and funding
6 authors at 3 institutions in 2 countries.
Funding
Abstract
backgroundFew studies have longitudinally explored the experience and needs of family caregivers of ICU survivors after patients' home discharge.
methodsQualitative content analysis of interviews drawn from a parent study that followed family caregivers of adults ICU survivors for 4 months post-ICU discharge.
resultsFamily caregivers (n = 20, all white, 80% woman) viewed home discharge as positive progress, but reported having insufficient time to transition from family visitor to the active caregiver role. Caregivers expressed feelings of relief during the steady recovery of family members' physical and cognitive function. However, the slow pace of improvement conflicted with their expectations. Even after patients achieved independent physical function, emotional needs persisted and these issues contributed to caregivers' anxiety, worry, and view that recovery was incomplete.
conclusionFamily caregivers of ICU survivors need information and skills to help managing patients' care needs, pacing expectations with actual patients' progress, and caregivers' health needs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.