Evidence map›Paper›PMID 29730797›Full record

ArticleGraefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie2018

Developing an item bank to measure the coping strategies of people with hereditary retinal diseases.

Mallika Prem Senthil, Jyoti Khadka, John De Roach, Tina Lamey, Terri McLaren, Isabella Campbell, Eva K Fenwick, Ecosse L Lamoureux, Konrad Pesudovs

Abstract readMulticenter Study
PubMed Publisher
In one paragraph

Article in Graefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Mallika Prem SenthilNHMRC Centre for Clinical Eye Research, Flinders University of South Australia, Adelaide, South Australia, 5001, Australia. prem0013@flinders.edu.au.ORCID http://orcid.org/0000-0001-6560-5594
Jyoti KhadkaNHMRC Centre for Clinical Eye Research, Flinders University of South Australia, Adelaide, South Australia, 5001, Australia.
John De RoachDepartment of Medical Technology and Physics, Australian Inherited Retinal Disease Register and DNA Bank (AIRDR), Sir Charles Gairdner Hospital, Nedlands, Western Australia, 6009, Australia.
Tina LameyDepartment of Medical Technology and Physics, Australian Inherited Retinal Disease Register and DNA Bank (AIRDR), Sir Charles Gairdner Hospital, Nedlands, Western Australia, 6009, Australia.
Terri McLarenDepartment of Medical Technology and Physics, Australian Inherited Retinal Disease Register and DNA Bank (AIRDR), Sir Charles Gairdner Hospital, Nedlands, Western Australia, 6009, Australia.
Isabella CampbellDepartment of Medical Technology and Physics, Australian Inherited Retinal Disease Register and DNA Bank (AIRDR), Sir Charles Gairdner Hospital, Nedlands, Western Australia, 6009, Australia.
Eva K FenwickCentre for Eye Research Australia, the Royal Victorian Eye, and Ear Hospital, University of Melbourne, Melbourne, Australia.
Ecosse L LamoureuxCentre for Eye Research Australia, the Royal Victorian Eye, and Ear Hospital, University of Melbourne, Melbourne, Australia.
Konrad PesudovsNHMRC Centre for Clinical Eye Research, Flinders University of South Australia, Adelaide, South Australia, 5001, Australia.

Funding

National Health and Medical Research Council 1031838
6 · The paper itself

Abstract

purposeOur understanding of the coping strategies used by people with visual impairment to manage stress related to visual loss is limited. This study aims to develop a sophisticated coping instrument in the form of an item bank implemented via Computerised adaptive testing (CAT) for hereditary retinal diseases.

methodsItems on coping were extracted from qualitative interviews with patients which were supplemented by items from a literature review. A systematic multi-stage process of item refinement was carried out followed by expert panel discussion and cognitive interviews. The final coping item bank had 30 items. Rasch analysis was used to assess the psychometric properties. A CAT simulation was carried out to estimate an average number of items required to gain precise measurement of hereditary retinal disease-related coping.

resultsOne hundred eighty-nine participants answered the coping item bank (median age = 58 years). The coping scale demonstrated good precision and targeting. The standardised residual loadings for items revealed six items grouped together. Removal of the six items reduced the precision of the main coping scale and worsened the variance explained by the measure. Therefore, the six items were retained within the main scale. Our CAT simulation indicated that, on average, less than 10 items are required to gain a precise measurement of coping.

conclusionsThis is the first study to develop a psychometrically robust coping instrument for hereditary retinal diseases. CAT simulation indicated that on an average, only four and nine items were required to gain measurement at moderate and high precision, respectively.

Indexed as

Adaptation, PsychologicalAdultAgedAged, 80 and overComputersEye Diseases, HereditaryFemaleHumansMaleMiddle AgedPsychometricsQuality of LifeRetinal DiseasesSurveys and QuestionnairesYoung AdultComputerized adaptive testingCopingHereditary retinal diseasesItem bankPsychometric propertiesRasch analysis

Identifiers

PMID29730797

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.