Evidence map›Paper›PMID 29728347›Full record

ArticleJMIR research protocols2018

The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment.

Eden G Robertson, Claire E Wakefield, Richard J Cohn, Tracey O'Brien, David S Ziegler, Joanna E Fardell

Abstract read
In one paragraph

Article in JMIR research protocols, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Article
  2. Article
  3. Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration.Medical decision making : an international journal of the Society for Medical Decision Making · 2021
    Article
  4. Article
  5. Article
  6. Decision-making in childhood cancer: parents' and adolescents' views and perceptions.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019
    Article
  7. User stories as lightweight requirements for agile clinical decision support development.Journal of the American Medical Informatics Association : JAMIA · 2019
    Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Eden G RobertsonBehavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia.ORCID http://orcid.org/0000-0001-9395-7896
Claire E WakefieldBehavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia.ORCID http://orcid.org/0000-0001-7704-7067
Richard J CohnBehavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia.ORCID http://orcid.org/0000-0002-2400-1353
Tracey O'BrienDiscipline of Paediatrics, School of Women's and Children's Health, University of New South Wales, Kensington, Australia.ORCID http://orcid.org/0000-0002-5759-6162
David S ZieglerDiscipline of Paediatrics, School of Women's and Children's Health, University of New South Wales, Kensington, Australia.ORCID http://orcid.org/0000-0001-7451-7916
Joanna E FardellBehavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia.ORCID http://orcid.org/0000-0001-7334-3475

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe internet is increasingly being used to disseminate health information. Given the complexity of pediatric oncology clinical trials, we developed Delta, a Web-based decision aid to support families deciding whether or not to enroll their child with cancer in a clinical trial.

objectiveThis paper details the Agile development process of Delta and user testing results of Delta.

methodsDevelopment was iterative and involved 5 main stages: a requirements analysis, planning, design, development, and user testing. For user testing, we conducted 13 eye-tracking analyses and think-aloud interviews with health care professionals (n=6) and parents (n=7).

resultsResults suggested that there was minimal rereading of content and a high level of engagement in content. However, there were some navigational problems. Participants reported high acceptability (12/13) and high usability of the website (8/13).

conclusionsDelta demonstrates the utility for the use of Agile in the development of a Web-based decision aid for health purposes. Our study provides a clear step-by-step guide to develop a Web-based psychosocial tool within the health setting.

Indexed as

childdecision makingdecision support techniquesneoplasmspatient portalspatients

Identifiers

PMID29728347
PMCPMC5960036

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.