Evidence map›Paper›PMID 29720193›Full record

ArticleHealth and quality of life outcomes2018

Assessing health-related quality of life in Japanese children with a chronic condition: validation of the DISABKIDS chronic generic module.

Hatoko Sasaki, Naoko Kakee, Naho Morisaki, Rintaro Mori, Ulrike Ravens-Sieberer, Monika Bullinger

Abstract readValidation Study
In one paragraph

Article in Health and quality of life outcomes, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Hatoko SasakiMedical Support Center for Japan Environment and Children's Study (JECS), National Center for Child Health and Development, 2-10-1 Okura, Setagaya, Tokyo, 157-8535, Japan. hatokos@hotmail.com.
Naoko KakeeDivision of Bioethics, National Center for Child Health and Development, Tokyo, Japan.
Naho MorisakiDepartment of Social Medicine, National Center for Child Health and Development, Tokyo, Japan.
Rintaro MoriDepartment of Health Policy, National Center for Child Health and Development, Tokyo, Japan.
Ulrike Ravens-SiebererDepartment of Child and Adolescent Psychiatry, Psychotherapy, and Psychosomatics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Monika BullingerDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.

Funding

Ministry of Health, Labour and Welfare H28-Nanchitou-Shitei-004
6 · The paper itself

Abstract

backgroundThis study examined the reliability and validity of the Japanese versions of the DISABKIDS-37 generic modules, a tool for assessing the health-related quality of life (HRQOL) of children and adolescents with a chronic condition.

methodsThe study was conducted using a sample of 123 children/adolescents with a chronic medical condition, aged 8-18 years, and their parents. Focus interviews were performed to ensure content validity after translation. The classical psychometric tests were used to assess reliability and scale intercorrelations. The factor structure was examined with confirmatory factor analysis (CFA). Convergent validity was assessed by the correlation between the total score and the sub-scales of DISABKIDS-37 as well as the total score of KIDSCREEN-10.

resultsBoth the children/adolescent and parent versions of the score showed good to high internal consistency, and the test-retest reliability correlations were r = 0.91 or above. The CFA revealed that the modified models for all domains were better fit than the original 37 item scale model for both self-report and proxy-report. Moderate to high positive correlations were found for the associations within DISABKIDS-37 sub-scales and between the subscales and total score, except for the treatment sub-scale, which correlated weakly with the remaining sub-scales. The total score of the child-reported version of KIDSCREEN-10 correlated significantly and positively with the total score and all the sub-scales of the child-reported version of DISABKIDS-37 except the Treatment sub-scale in adolescents.

conclusionsThe modified models of Japanese version of DISABKIDS generic module were psychometrically robust enough to assess the HRQOL of children with a chronic condition.

Indexed as

Quality of LifeAdolescentChildChronic DiseaseFactor Analysis, StatisticalFemaleHumansJapanMaleParentsPsychometricsReproducibility of ResultsSelf ReportSeverity of Illness IndexTranslationsAdolescentsAssessmentChildrenChronic conditionsHealth-related quality of lifeValidation

Identifiers

PMID29720193
PMCPMC5932858

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