ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Co-designing for quality: Creating a user-driven tool to improve quality in youth mental health services.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
47 citing papers in PubMed, 3 syntheses or guidelines pooled it, 92 citations in OpenAlex.
- Evaluating co-design approaches with parents in paediatric healthcare: a systematic review.BMC health services research · 2025Pooled it
- Measurement and outcomes of co-production in health and social care: a systematic review of empirical studies.BMJ open · 2023Pooled it
- Therapeutic Landscapes and Psychiatric Care Facilities: A Qualitative Meta-Analysis.International journal of environmental research and public health · 2022Pooled it
- Improving Digital Measurement-Based Care Within Emerging Adult Mental Health Care Pathways: Protocol for a Co-Design Phase Embedded in a Multimethod Rapid Learning Health System Study.JMIR research protocols · 2026Article
- Addressing the social determinants of youth mental health in Newham and Northern Devon: reflections on co-design and systems change.BMC public health · 2026Article
- An adaptive, youth-centred co-design methodology: place-based co-design centring youth and community participation.Research involvement and engagement · 2026Article
- Exploring the Acceptability, Appropriateness, and Utility of a Digital Single-Session Intervention (Project SOLVE-NZ) for Adolescent Mental Health in New Zealand: Interview Study Among Students and Teachers.JMIR formative research · 2026Article
- Adolescents as co-designers: adapting human-centered design to develop school-based mental health strategies in northern Ghana.BMC public health · 2025Article
- A systematic review of co-production approaches that involve family members, loved ones, or carers in the development of mental health or substance use resources/interventions.Research involvement and engagement · 2025Review
- Better together: participatory action research for co-constructing an intervention to enhance leisure activities in non-ambulatory adolescents with cerebral palsy.Research involvement and engagement · 2025Article
- Improved Mental Health Support for Patients With Self-Harm Injuries in the Emergency Department: Design and Development of a Future Patient Care Pathway.International journal of mental health nursing · 2025Article
- Personalized and collaborative use of digital measurement-based care tools enhances engagement among young adults: a mixed-methods study.BMC health services research · 2025Article
- Youth Care Stories: A Scoping Review Into What, Why and How Narrative Approaches Understand and Improve Quality of Care for Young People.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Implementation of a teen sleep app in Canadian high schools: Preliminary evidence of acceptability, engagement, and capacity for supporting healthy sleep habits.Journal of sleep research · 2024Article
- Anything goes for participant, patient and public involvement in youth mental health research.JCPP advances · 2024Article
- No decision about me, without me: Collaborating with young people in mental health research.JCPP advances · 2024Article
- Co-designing discharge communication interventions for mental health visits to the pediatric emergency department: a mixed-methods study.Research involvement and engagement · 2024Article
- "If you don't actually care for somebody, how can you help them?": Exploring Young People's Core Needs in Mental Healthcare-Directions for Improving Service Provision.Community mental health journal · 2024Article
- A qualitative evaluation of a co-design process involving young people at risk of suicide.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- The Involvement of Service Users and People With Lived Experience in Mental Health Care Innovation Through Design: Systematic Review.JMIR mental health · 2023Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAlthough high quality mental health care for children and youth is a goal of many health systems, little is known about the dimensions of quality mental health care from users' perspectives. We engaged young people, caregivers and service providers to share experiences, which shed light on quality dimensions for youth mental health care.
methodsUsing experience-based co-design, we collected qualitative data from young people aged 16-24 with a mental disorder (n = 19), identified caregivers (n = 12) and service providers (n = 14) about their experiences with respect to youth mental health services. Experience data were collected using multiple approaches including interviews, a suite of online and smartphone applications (n = 22), and a co-design event (n = 16) and analysed to extract touch points. These touch points were used to prioritize and co-design a user-driven prototype of a questionnaire to provide feedback to service providers.
findingsYoung people, caregiver and service provider reports of service experiences were used to identify aspects of care quality at eight mental health service contact points: Access to mental health care; Transfer to/from hospital; Intake into hospital; Services provided; Assessment and treatment; Treatment environment; and Caregiver involvement in care. In some cases, low quality care was harmful to users and their caregivers. Young people co-designed a prototype of a user-driven feedback questionnaire to improve quality of service experiences that was supported by service providers and caregivers at the co-design event.
conclusionBy using EBCD to capture in-depth data regarding experiences of young people, their caregivers and service providers, study participants have begun to establish a baseline for acceptable quality of mental health care for young people.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.