ArticleBMC public health2018
Knowledge, perception and practices towards sickle cell disease: a community survey among adults in Lubaga division, Kampala Uganda.
Article in BMC public health, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
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Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Update on the practice of premarital screening for sickle cell traits in Africa: a systematic review and meta-analysis.BMC public health · 2024Pooled it
- mHealth-Enabled Stroke Screening for Pediatric Sickle Cell Disease in Low-Resource Settings: Systematic Literature Review of Critical Barriers, Emerging Technologies, and AI-Driven Solutions.JMIR pediatrics and parenting · 2026Review
- Beyond the Prescription: Hydroxycarbamide Utilization and Adherence Among Persons Living with Sickle Cell Disease in Rural Ghana.Patient preference and adherence · 2026Article
- Sickle cell disease and maternity care: A qualitative synthesis of women's and health providers experiences.PloS one · 2026Article
- Socio-Economic Impacts of Childhood Sickle Cell Disease on Households in Lubumbashi: An Exploratory Mixed-Methods Study.ClinicoEconomics and outcomes research : CEOR · 2026Article
- Perceptions of sickle cell disease and genetic counseling among single young adults in Tamale, Ghana.Journal of community genetics · 2025Article
- Knowledge of sickle cell disease and associated factors among undergraduate students at Makerere University: a cross-sectional study.African health sciences · 2025Article
- Healthcare utilisation among people living with sickle cell disease in the Upper West Region of Ghana.BMC health services research · 2025Article
- A mixed-method study on awareness, haemoglobin phenotype result accuracy and sickle cell knowledge among parents of children with sickle cell disease in ibadan, Nigeria.BMC public health · 2025Article
- Strategies for reducing child mortality due to sickle cell disease in Uganda: a narrative review.Annals of medicine and surgery (2012) · 2025Review
- Low uptake and poor knowledge of preconception sickle cell trait screening among pregnant women in Bushenyi District, southwestern Uganda: Implications for sustainable development goals.Preventive medicine reports · 2025Article
- Risk factors associated with pain episodes among sickle cell patients that visited Mulago National Referral Hospital-Uganda.BMC health services research · 2025Article
- Hidden stories of caregivers with children living with sickle cell disease in Uganda: Experiences, coping strategies and outcomes.PloS one · 2025Article
- Sickle cell disease awareness and perception among Christian religious leaders in Accra Metropolis: a qualitative study.Journal of community genetics · 2024Article
- Prevalence and predictors of iron deficiency anaemia among children with sickle cell disease in Dodoma, Tanzania: a cross-sectional study.BMC public health · 2024Article
- Endline assessment of knowledge about sickle cell disease among the tribal community of Chhotaudepur district of Gujarat.Journal of community genetics · 2024Article
- Article
- Impact of Sickle Cell Awareness Day on online health information seeking in Africa using Google Trends.Health promotion international · 2023Article
- Bridging the gaps in newborn screening programmes: Challenges and opportunities to detect haemoglobinopathies in Africa.African journal of laboratory medicine · 2023Review
- Determinants of retention in care of newborns diagnosed with sickle cell disease in Liberia: Results from a mixed-methods study of caregivers.PLOS global public health · 2023Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWorldwide, the burden of Sickle Cell disease (SCD) has not been amply addressed. In Africa, Uganda has the 5th highest burden, a situation aggravated by limited and inaccessible formal social support structures to aid patients and families cope better with the psychosocial burden of SCD. In addition, this has been coupled with stigmatization and discrimination of people living with sickle cell disease causing isolation from family and society.
methodThis cross sectional study therefore set out to determine the attitudes, perception and level of awareness towards Sickle Cell disease in Ugandan communities. The study used an interviewer administered questionnaires to collect the data.
resultsOut of 110 people sampled; 91.2% of the respondents had ever heard of SCD with the highest proportion 38.7% hearing of SCD from friends and family. Close to half of the respondents 48% knew that SCD is inherited, however a large proportion 44.2% did not know the cause of SCD. However, 68.7% of the respondents said they cannot marry a person with SCD.
conclusionThe study results indicate that more effort needs to be done to promote sickle cell awareness in Uganda communities with emphasis on the inclusion of sickle cell in health education campaigns.
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