ArticleJournal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association (Division 43)2018
Patterns of family management for adolescent and young adult brain tumor survivors.
Article in Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association (Division 43), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.
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Who cites it
18 citing papers in PubMed, 2 syntheses or guidelines pooled it, 49 citations in OpenAlex.
- What are the experiences of supportive care in people affected by brain cancer and their informal caregivers: A qualitative systematic review.Journal of cancer survivorship : research and practice · 2024Pooled it
- Pooled it
- Life-Sustaining Treatment Decisions and Parent Caregiving Experiences for Children With Medical Complexity.JAMA network open · 2026Article
- Family caregivers' involvement in home-based recovery for patients with schizophrenia: a qualitative study in Beijing, China.Frontiers in psychiatry · 2026Article
- Effects of Family Caregiver-Nurse Communication on Family Management and Family Caregiver Uncertainty Regarding the Care of Children With Long-Term Ventilator Dependence.Journal of family nursing · 2025Article
- Family management styles of families of children and adolescents with developmental disabilities during the COVID-19 pandemic: a cross-sectional study.Scientific reports · 2025Article
- The development and validation of a needs assessment tool for use with YOUng adult survivors of a CentrAl Nervous system tumor (YOU-CAN).Neuro-oncology practice · 2024Article
- Caregivers matter: Neurological vulnerability for pediatric brain tumor survivors.Neuro-oncology practice · 2023Article
- Importance of Social Support of Parents of Children with Cancer: A Multicomponent Model Using Partial Least Squares-Path Modelling.International journal of environmental research and public health · 2023Article
- Adaptation of families of adult patients with brain tumor: Partial least squares structural equation modeling.PloS one · 2023Article
- Psychosocial functioning of caregivers of pediatric brain tumor survivors.Pediatric blood & cancer · 2022Article
- Tracing the Use of the Family Management Framework and Measure: A Scoping Review.Journal of family nursing · 2021Article
- Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation.Journal of family nursing · 2021Article
- Facilitating Transitions to Adulthood in Pediatric Brain Tumor Patients: the Role of Neuropsychology.Current oncology reports · 2020Review
- Parenting stress trajectories during infancy in infants with congenital heart disease: Comparison of single-ventricle and biventricular heart physiology.Congenital heart disease · 2019Article
- A Primer on Mixed Methods for Pediatric Researchers.Journal of pediatric psychology · 2019Article
- Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors.Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology NursesArticle
- Social Support Received and Provided in the Adjustment of Parents of Children With Cancer.Integrative cancer therapiesArticle
Corrections and comments
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Authors and funding
13 authors at 3 institutions in 1 country.
Funding
Abstract
Little is known about how families systemically incorporate the work of caring for adolescent and young adult (AYA) survivors of childhood brain tumors who often remain dependent on their families well into adulthood. The primary aim of this study was to develop a typology of family management (FM) patterns for AYA survivors. The secondary aims were to compare them with FM patterns previously described for children with chronic health conditions and to validate the patterns using quantitative and qualitative data. Guided by the Family Management Styles Framework, a sequential, mixed-methods design was used to gather quantitative data from 186 mothers (primary caregivers) and 134 AYA survivors. FM patterns (family focused; somewhat family focused; somewhat condition focused; and condition focused) were identified using cluster analysis of data from the Family Management Measure. FM patterns were found to be similar to those for children with chronic health physical conditions and were significantly related to maternal quality of life, survivor quality of life (health-related quality of life [self- and mother proxy report]), cancer-related variables (treatment intensity, medical late effects), and family functioning in theoretically meaningfully ways. Significant demographic characteristics included private insurance and AYA survivors' engagement in school or employment. Qualitative analysis of data from 45 interviews with mothers from the larger sample provided additional support for and elaborated descriptions of FM patterns. Identification of FM patterns moves the science of family caregiving forward by aggregating data into a conceptually based typology, thereby taking into account the complex intersection of the condition, the family, and condition management. (PsycINFO Database Record
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