ArticleJournal for specialists in pediatric nursing : JSPN2018
Respite care services for children with special healthcare needs: Parental perceptions.
Article in Journal for specialists in pediatric nursing : JSPN, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed.
- Factors associated with social participation among children with fragile X syndrome.Disability and health journal · 2026Article
- How Do Parents Experience Overnight Respite? Parent-Reported Outcomes in Families of Children With Intellectual and Developmental Disabilities.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Posttraumatic growth in mothers of children with special needs: exploring experiences in Türkiye.BMC psychology · 2026Article
- Caregiver Perspectives for Pediatric Patients with Acute Kidney Injury on Dialysis: A Narrative Review.Journal of multidisciplinary healthcare · 2026Review
- Experiences of migrant parents of children with special health and welfare needs in Nordic countries: a scoping review.Scandinavian journal of public health · 2025Article
- Understanding the caregiver experience: a cross-sectional study of caregiver burden among those caring for chronically ill children in Jordan.BMJ paediatrics open · 2025Article
- In-home respite care in dementia: An evolutionary concept analysis.International journal of nursing sciences · 2025Review
- Enhancing autism care through remote support: A family-centered approach.World journal of psychiatry · 2025Article
- Sleep Quality and Evening Salivary Cortisol Levels in Association with the Psychological Resources of Parents of Children with Developmental Disorders and Type 1 Diabetes.Journal of autism and developmental disorders · 2025Article
- Understaffed Home Nursing and Wellbeing of Families of Children with Medical Complexity.Children (Basel, Switzerland) · 2025Article
- Article
- Redefining respite for family caregivers: lessons learned from the COVID-19 pandemic.Frontiers in health services · 2025Article
- Recovery environments in places of daily living: a scoping review and conceptual analysis.BMC public health · 2024Article
- Benefits of Respite Services on the Psycho-Emotional State of Families of Children Admitted to Hospice Palliative Care Unit: Preliminary Study on Parents' Perceptions.Healthcare (Basel, Switzerland) · 2024Article
- Exploring fathers' experiences of caring for a child with complex care needs through ethnography and arts-based methodologies.BMC pediatrics · 2024Article
- Social support needs of caregivers rearing children with severe motor and intellectual disabilities at home in Japan.Frontiers in rehabilitation sciences · 2024Article
- Impact of Respite Care Services Availability on Stress, Anxiety and Depression in Military Parents who have a Child on the Autism Spectrum.Journal of autism and developmental disorders · 2023Article
- Information and Communication Technologies to Support the Provision of Respite Care Services: Scoping Review.JMIR nursing · 2023Article
- Psychosocial experiences of mothers caring for children with cerebral palsy in the eThekwini district.Health SA = SA Gesondheid · 2023Article
- An agenda to develop Pediatric Palliative care programs to serve children with life-threatening and life-limiting conditions in the Gulf Cooperation Council countries.Palliative care and social practice · 2023Review
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
purposeParents of children with special healthcare needs may become overwhelmed with the ongoing caregiving needs of their children. Caring for a child with special healthcare needs is often challenging, requiring specialized training in many cases. As a result, parents can struggle to find qualified caregivers capable of providing them a break from the 24/7 care of their child. Respite care programs are designed to provide caregivers with a much-needed temporary break. The purpose of this study was to examine parental perceptions of utilizing a respite care program. DESIGN AND
methodsTwenty-two parents who had a child with special healthcare needs who attended a Midwestern respite care program completed a Participant Characteristic Form addressing their experiences caring for their child with special healthcare needs and using respite care services. Parents participated in a focus group (N = 4) to explore their perceptions and experiences of respite care participation. Multistage thematic analysis and descriptive statistics were used to analyze the data.
resultsThemes emerging from the data included: Constant care demands; It is just so stressful; Respite is a gift, we get a break; Respite program "fit"; and Respite is their special time too. Parents emphasized the benefits of respite care for their marital relationship, as well as the benefits to the children with special healthcare needs and their siblings. Parents also described the importance of tailoring respite care to the unique needs of their family. PRACTICE IMPLICATIONS: Nurses and other healthcare professionals play a critical role in addressing the unmet respite care needs of parents of children with special healthcare needs by identifying unmet needs and making appropriate referrals to services that will meet the unique needs of the family. Healthcare professionals can also volunteer with existing programs to help expand access to respite care services and increase the availability of adequately trained respite care providers whom parents can trust to provide for the complex healthcare needs of their children.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.