ArticleYearbook of medical informatics2018
The Privacy and Security Implications of Open Data in Healthcare.
Article in Yearbook of medical informatics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 35 citations in OpenAlex.
- Globalization in the Healthcare Industry: Drivers, Risks, and Adaptation.Healthcare (Basel, Switzerland) · 2026Review
- Assessing the Evolution and Influence of Medical Open Databases on Biomedical Research and Health Care Innovation: A 25-Year Perspective With a Focus on Privacy and Privacy-Enhancing Technologies.Journal of medical Internet research · 2026Article
- AI-driven virtual cell models in preclinical research: technical pathways, validation mechanisms, and clinical translation potential.NPJ digital medicine · 2025Review
- Implementing Artificial Intelligence in Critical Care Medicine: a consensus of 22.Critical care (London, England) · 2025Review
- Salzburg Intensive Care database (SICdb): a detailed exploration and comparative analysis with MIMIC-IV.Scientific reports · 2024Article
- Call to action for global and national actors for open health data.PLOS digital health · 2023Article
- Prediction of the Contribution Ratio of a Target Metabolic Enzyme to Clearance from Chemical Structure Information.Molecular pharmaceutics · 2023Article
- Assessment of a Mobile Health iPhone App for Semiautomated Self-management of Chronic Recurrent Medical Conditions Using an N-of-1 Trial Framework: Feasibility Pilot Study.JMIR formative research · 2022Article
- Effect of data leakage in brain MRI classification using 2D convolutional neural networks.Scientific reports · 2021Article
- Individual notions of fair data sharing from the perspectives of Swiss stakeholders.BMC health services research · 2021Article
- Using Open Source, Open Data, and Civic Technology to Address the COVID-19 Pandemic and Infodemic.Yearbook of medical informatics · 2021Article
- Opportunities and Challenges for Machine Learning in Rare Diseases.Frontiers in medicine · 2021Review
- Evidence-Based Health Informatics as the Foundation for the COVID-19 Response: A Joint Call for Action.Methods of information in medicine · 2020Article
- Privacy-preserving architecture for providing feedback to clinicians on their clinical performance.BMC medical informatics and decision making · 2020Article
- An Open Science Approach to Artificial Intelligence in Healthcare.Yearbook of medical informatics · 2019Review
- A beginner's guide to data stewardship and data sharing.Spinal cord · 2019Review
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 2 countries.
Funding
Abstract
objectiveThe International Medical Informatics Association (IMIA) Open Source Working Group (OSWG) initiated a group discussion to discuss current privacy and security issues in the open data movement in the healthcare domain from the perspective of the OSWG membership.
methodsWorking group members independently reviewed the recent academic and grey literature and sampled a number of current large-scale open data projects to inform the working group discussion.
resultsThis paper presents an overview of open data repositories and a series of short case reports to highlight relevant issues present in the recent literature concerning the adoption of open approaches to sharing healthcare datasets. Important themes that emerged included data standardisation, the inter-connected nature of the open source and open data movements, and how publishing open data can impact on the ethics, security, and privacy of informatics projects.
conclusionsThe open data and open source movements in healthcare share many common philosophies and approaches including developing international collaborations across multiple organisations and domains of expertise. Both movements aim to reduce the costs of advancing scientific research and improving healthcare provision for people around the world by adopting open intellectual property licence agreements and codes of practice. Implications of the increased adoption of open data in healthcare include the need to balance the security and privacy challenges of opening data sources with the potential benefits of open data for improving research and healthcare delivery.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.