ArticleIndian journal of pediatrics2019
Hospital Based Psychosocial Support Program for Children with ALL and their Families: A Comprehensive Triad's Perspective.
Article in Indian journal of pediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
5 citing papers in PubMed.
- Inequities in childhood cancer research: A scoping review.EJC paediatric oncology · 2024Article
- The Journey of Parents during Treatment of Cancer in Children: An Often Neglected but Important Concern.Indian journal of pediatrics · 2024Article
- Inception of a pediatric cancer caregiver support group guided by parental needs.Cancer reports (Hoboken, N.J.) · 2022Article
- The setting up and running of a children's activity group and learning centre for children with haematological and oncology conditions.Cancer reports (Hoboken, N.J.) · 2022Article
- Addressing Psychosocial Support in Children with Cancer in Low- and Middle-Income Countries.Indian journal of pediatrics · 2019Article
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo elucidate potential target areas of intervention and mechanisms for implementation of intervention for children with cancer during the treatment phase.
methodsFocused group discussion (FGDs) served as a primary source of providing phenomenal perspectives to explore the key objective. Eight focus groups of 45-60 min each were held with 5-9 members in each discussion. The participants were either patients, their caregivers or health care providers. The focus group audio recordings were professionally transcribed after all identifiers were removed. Employing a constructivist paradigm with a phenomenological approach, also known as emergent-systematic focus group design the study reported on families' experiences of childhood cancer as construction of objective reality. Investigator triangulation method was adopted to ensure trustworthiness.
resultsUsing constant comparison analysis, multistage process analysis was done which resulted in 849 codes, 32 subthemes, 20 themes and 5 domains. A total of 64 participants participated: 4 FGDs with parents of children with ALL (n = 31); 1 FGD with professionals working in the field of cancer (n = 10) and 3 FGDs with children with ALL (n = 23). Participant's mean age at the time of study was 10 y (+3.3) for children; 37 y (+4.93) for caregivers and 35 y (+3.5) for professionals. The number of participants and their age range at study varied slightly between the eight focus groups.
conclusionsCaregivers presented care burden and compromised aspects of Quality of life (QOL). An effective and culturally sensitive psychosocial support for patients and their families during and post treatment, in addition to medical therapy, is strongly recommended.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.